Contact Us
New Zealand Organisation for Rare Disorders
PO Box 38-538,
Wellington Mail Centre
Phone: +64 4 471 2226
Email: enquiries@nzord.org.nz
Charities Commission Registration CC22512
Welcome
NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseases
How can we help
- Find a support group
- Read more about what NZORD does
- Find rare disease information
- Connect with the NZORD network
- Read other New Zealanders' stories
- Get resources for your support group
- Follow news and issues
- Find practical advice
- Navigate health care & support systems
- Find out about research
NZORD has been generously supported for many years by the Deane Endowment Trust. In 2012 and 2013 NZORD is the proud recipient of funding support from the following sponsors, many of whom are also long term supporters:
In past years NZORD has been generously supported by JR McKenzie Trust, Todd Foundation, Telecom, the Child Health Services Trust, the Starship Foundation, Beltas Clinical Research, and ANZ Bank.
Features and updates
- PNH Support Association campaigns for new medicine
Another rare disease group to be abandoned by our health system? – May 2013 - Carer payment decision stuns the carer community
It is one step forward and two back – May 2013 - Rare Disease Day Seminar
Watch a selection of the 11 presentations on NZORD’s YouTube channel - Newsletter 2013 #4
Our latest news – 31 May 2013 - Our People
NZORD’s leaders.