Contact Us
New Zealand Organisation for Rare Disorders
PO Box 38-538,
Wellington Mail Centre
Phone: +64 4 471 2226
Email: enquiries@nzord.org.nz
Charities Commission Registration CC22512
Welcome
NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseases
How can we help
- Find a support group
- Read more about what NZORD does
- Find rare disease information
- Connect with the NZORD network
- Read other New Zealanders' stories
- Get resources for your support group
- Follow news and issues
- Find practical advice
- Navigate health care & support systems
- Find out about research
NZORD received funds and support in 2011/12 from the following organisations:
and the Deane Endowment Trust. In past years NZORD has been generously supported by JR McKenzie Trust, Todd Foundation, Telecom, the Child Health Services Trust, the Starship Foundation, Beltas Clinical Research, and ANZ Bank.
Features and updates
- NZORD executive director is President-elect of international rare diseases group
An important step in international collaborations – February 2012 - A Rare Day for Rare Diseases
Rare Disease Day 29 February 2012 – February 2012 - An action plan for rare diseases in New Zealand?
NZORD’s submission to the National Health Committee – November 2011 - Analysis of Pharmac’s new exceptional circumstances policy
Some improvements but notable failure to deal with specialised medicines for rare diseases – August 2011 - Newsletter 2012 #1
Our latest news – 31 January 2012 - Our People
NZORD's leaders.
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