Contact Us
New Zealand Organisation for Rare Disorders
PO Box 38-538,
Wellington Mail Centre
Phone: +64 4 471 2226
Email: enquiries@nzord.org.nz
Charities Commission Registration CC22512
Welcome
NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseases
How can we help
- Find a support group
- Read more about what NZORD does
- Find rare disease information
- Connect with the NZORD network
- Read other New Zealanders' stories
- Get resources for your support group
- Follow news and issues
- Find practical advice
- Navigate health care & support systems
- Find out about research
NZORD has been generously supported for many years by the Deane Endowment Trust. In 2012 and 2013 NZORD is the proud recipient of funding support from the following sponsors, many of whom are also long term supporters:
In past years NZORD has been generously supported by JR McKenzie Trust, Todd Foundation, Telecom, the Child Health Services Trust, the Starship Foundation, Beltas Clinical Research, and ANZ Bank.
Features and updates
- Rare Disease Day Seminar
Watch a selection of the 11 presentations - New Zealand Rare Disease Day press release – 28 February 2013
Calls for an orphan drugs access policy to overcome Pharmac’s systems failure with specialised medicines - Common themes as groups respond to Ministry consultation on payments to family carers Disappointment at lack of sound principles contained in policy options – November 2012
- Newsletter 2013 #3
Our latest news – 12 April 2013 - Our People
NZORD's leaders.