Charities Commission Registration CC22512

Welcome

NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseases

NZORD received funds and support in 2011/12 from the following organisations:

and the Deane Endowment Trust. In past years NZORD has been generously supported by JR McKenzie Trust, Todd Foundation, Telecom, the Child Health Services Trust, the Starship Foundation, Beltas Clinical Research, and ANZ Bank.

Features and updates

• Submission to Pharmac on funding access criteria for special foods
  The need to focus on reasonable decisions related to particular patient groups – May 2012
• Support for changes to the Health Information Privacy code
  NZORD’s submission to the Privacy Commissioner – April 2012
• NZORD executive director is President-elect of international rare diseases group
  An important step in international collaborations – February 2012
• A Rare Day for Rare Diseases
  Rare Disease Day 29 February 2012 – February 2012
• Newsletter 2012 #1
  Our latest news – 31 January 2012
• Our People
  NZORD's leaders.