Contact Us
New Zealand Organisation for Rare Disorders
PO Box 38-538,
Wellington Mail Centre
Phone: +64 4 471 2226
Email: enquiries@nzord.org.nz
Charities Commission Registration CC22512
Welcome
NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseases
How can we help
- Find a support group
- Read more about what NZORD does
- Find rare disease information
- Connect with the NZORD network
- Read other New Zealanders' stories
- Get resources for your support group
- Follow news and issues
- Find practical advice
- Navigate health care & support systems
- Find out about research
Features and updates
- Rare disease patients to march on Parliament
Pompe patients seeking treatment and an orphan drugs policy for NZ – November 2011 - Current reviews of not-for-profit organisations by Internal Affairs and Law Commission
NZORD argues for more dialogue and a strategic approach – October 2011 - Analysis of Pharmac’s new exceptional circumstances policy
Some improvements but notable failure to deal with specialised medicines for rare diseases – August 2011 - Newsletter 2011 #6
Our latest news – 5 December 2011 - Our People
NZORD's leaders. - Our Sponsors
We value their support.
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