Rare Disease Day cocktail evening

Cocktail evening invitation
View invitation

NZORD invites you to a cocktail evening on Monday 29th February to celebrate Rare Disease Day, to be held in Wellington at the Wellington Club. Rachel Callander from the Super Power Baby Project will be our special guest speaker.

Tickets are on sale now for $75. Order yours from comms@nzord.org.nz.

Meeting the community

On March 1–3, NZORD’s chief executive Letitia O'Dwyer will be travelling to Auckland, Christchurch and Dunedin to meet members of the rare disease community. Please pop in to say hello and catch up over refreshments. View the graphic showing the dates and venues.


Welcome to the New Zealand Organisation for Rare Disorders (NZORD).

NZORD is a registered charitable trust (Charities Commission registration CC22512) that was set up in September 2000.

NZORD welcomes the full extended (patients, family, friends, clinicians and researchers) rare disease community as well as the common disease community by providing support, resources, advocacy and engaging in policy matters that affect the health of all New Zealanders.

The NZORD website offers a central starting point for patients and families affected by rare disorders, and helps families and patients to find essential information as they journey through the health and disability system.

Information is one of the best resources a newly diagnosed patient and their family can be given access to. Being diagnosed with a rare disease can be isolating and it is hard to know where to turn after the initial diagnosis.

One of NZORD’s priorities is to maintain and improve the information we offer to anyone seeking information about rare disorders, and assisting those patients and their families to find support.

Much of the information contained in this website is based on the needs experienced by families embarking on a journey that may be similar to your own, or a close family member or a friend.