NZORD - the New Zealand Organisation for Rare Disorders

• Is a registered Charitable Trust.
• Was set up in September 2000, following a conference of over 30 rare disease support groups.
• Helps people affected by rare disorders and their families to find essential information.
• Provides resources and information for rare disease support groups.
• Monitors rare disease issues and policy matters.
• Builds partnerships between patients/families, support groups, clinicians, researchers, policy-makers and industry.

Who We Are

• Our People: NZORD is headed by an Executive Director, and steered by a Board of Trustees.
• Support Groups Network : NZORD brings together a large number of New Zealand support groups for people/families affected by rare disorders.
  

What We Do

• How NZORD Can Help You : how NZORD can help people/families affected by a rare disease, rare disease support groups, clinicians and researchers.
• Our Mission:  includes improving information for patients, their family and professionals, and building partnerships to accelerate research towards control and cure of rare disorders.
• NZORD Activities: lists our main activities and achievements since establishment in September 2000.
  

Our Sponsors

The people and organisations who help us turn the ideas into reality.