Welcome. NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseases.

	Patients & Families				Support Groups
	Find Rare Disease Information. Find practical advice and links to a Support Group. Follow Research and Policy Issues. Read other New Zealanders' Stories.				Connect to the NZORD Network. Post your group's information on this website. Connect with families, specialists and researchers.
	Researchers & Policy Makers				Clinicians
	Monitor Rare Disease policy issues. Communicate with Support and Advocacy Groups.				Use our links to find reliable up-to-date Rare Disease Information. Refer patients to our website for information and support.

New Zealand Organisation for Rare Disorders
P. O. Box 38-538, Wellington Mail Centre. Phone +64 4 566 7707, Fax +64 4 566 7717,
Email enquiries@nzord.org.nz

Features and updates...

• Minister helps to rescue genetic services report
  Central policy initiative on rare disorders - March 2008
• Submission to Ministry of Health on tobacco displays
  Smoking impacts on health services severely limit access for rare diseases - February 2008
• Submission on the Public Health Bill
  Public health impacts of rare diseases and improved screening leadership are needed - March 2008
• 2008 Genethics competition launched
  Design a poster about designing a child - Closing date 25 July 2008
• Our People
  NZORD's leaders.
• Our Sponsors
  We value their support.
• Events Calendar
  What's on in the health & disability sector.
• Newsletter 2008 #2
  Our latest news - 7 May 2008

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