Rare disease gateways

The gateways perform a different function to databases. They provide links to many other sites that have disease information available. In this way they offer numerous sources of additional information. Some of these will be links back to the databases we have described, and some have interaction with the databases to give you an automatic search for your disease. They have a wide variety of other resources and links in the site too, and this may provide you with a lot of additional information relevant to your condition.

ORDR: Office of Rare Disease Research

Here you can find information on almost 7,000 rare diseases, including links to current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. The site is free access, user friendly, and their home page provides easy to follow links and more detailed descriptions.

The Office of Rare Disease Research is an American government office within the National Institutes of Health. Its role is to promote information, research and treatment for rare diseases and its site provides links to a wide range of good quality rare disease information resources. Go to ORDR.

HON: Health on the Net Foundation

HON created this site to guide non-medical users and medical practitioners to all useful and reliable online medical and health information. This includes both medical and support sites that are already in existence, along with their own online information. It is a user friendly site, with the ability to personalise its capabilities depending on whether you are a lay person or a medical professional. Access is free to all users.

HON, initiated in 1995, is a non-profit Swiss-based international organisation. In July 2002 it was granted official NGO special consultative status by the Economic and Social Council of the United Nations. Go to HON.

Karolinska Institutet

This site was designed to provide open access to resources on the internet, for the general public and health care professionals, as part of the Karolinska Institutet's mission to improve the health of mankind through research, education and information. You will find access to medical databases, educational resources, online medical libraries, patient support groups, and a wide range of resources encompassing diagnosis, treatment and health information.

Karolinska Institutet is based in Sweden and is one of Europe's largest and most acclaimed medical universities. Go to KI.

James