Rare Disease Day cocktail evening

Cocktail evening invitation
View invitation

NZORD invites you to a cocktail evening on Monday 29th February to celebrate Rare Disease Day, to be held in Wellington at the Wellington Club. Rachel Callander from the Super Power Baby Project will be our special guest speaker.

Tickets are on sale now for $75. Order yours from comms@nzord.org.nz.

Meeting the community

On March 1–3, NZORD’s chief executive Letitia O'Dwyer will be travelling to Auckland, Christchurch and Dunedin to meet members of the rare disease community. Please pop in to say hello and catch up over refreshments. View the graphic showing the dates and venues.

Living with a rare disease

If you or someone you love has just been diagnosed recently with a rare disorder, or if tests are underway, then you probably have lots of questions and may not know quite where to start… That's an experience many of us had anyway, and we've collected this information to address the sorts of questions we had when starting out on our own journeys.

This introductory guide is written by family members for family members.