New Zealand Organisation for Rare Disorders
PO Box 38-538,
Wellington Mail Centre
Phone: +64 4 471 2226
Charities Commission Registration CC22512
Many of the sites also act as gateways to other Internet resources on rare diseases, and through these you may find access to a wide variety of articles, websites, support groups and researchers.
Other pages on our site will guide you towards understanding causes, basic biology, genetics and research efforts, and some will guide you to a variety of New Zealand and international health and disability resources.
Take some time to browse through the site and follow our links to find your information, but if you have any major difficulty finding what you are looking for after a thorough search, feel free to email us with your questions.