Contact Us

New Zealand Organisation for Rare Disorders

PO Box 38-538,

Wellington Mail Centre

Phone: +64 4 471 2226

Email:

Charities Commission Registration CC22512

Finding Information

On our rare disease information pages you will find a series of links to rare disease databases. To help you find your way to information on the disorder you are interested in, we have written up a number of user guides that will help you to find your way to the information in each database. These databases are written by professionals and some are very complex but not all. You are likely to find the information on your disorder in at least one of these, and possibly in two or more.

Many of the sites also act as gateways to other Internet resources on rare diseases, and through these you may find access to a wide variety of articles, websites, support groups and researchers.

Other pages on our site will guide you towards understanding causes, basic biology, genetics and research efforts, and some will guide you to a variety of New Zealand and international health and disability resources.

Take some time to browse through the site and follow our links to find your information, but if you have any major difficulty finding what you are looking for after a thorough search, feel free to email us with your questions.