Rare Disease Day cocktail evening

Cocktail evening invitation
View invitation

NZORD invites you to a cocktail evening on Monday 29th February to celebrate Rare Disease Day, to be held in Wellington at the Wellington Club. Rachel Callander from the Super Power Baby Project will be our special guest speaker.

Tickets are on sale now for $75. Order yours from comms@nzord.org.nz.

Meeting the community

On March 1–3, NZORD’s chief executive Letitia O'Dwyer will be travelling to Auckland, Christchurch and Dunedin to meet members of the rare disease community. Please pop in to say hello and catch up over refreshments. View the graphic showing the dates and venues.

Support groups

Support groups can provide immense support and assistance to people who are impacted by disease.

Some patients with a rare disease may be virtually alone in New Zealand, or there may be just a handful of other cases.

Support groups can make a huge positive difference. Support groups can:

  • share direct personal experience
  • provide emotional support
  • provide short-cuts to information and treatment
  • accumulate highly specific information and resources
  • effectively represent the interests of their group

NZORD provides resources to help support groups get established and to facilitate their working effectively.

The support group directory is compiled by NZORD, it incorporates New Zealand health and disability support and information groups for rare and common disorders.

See our list of Support Groups.