Stories from around the world

These stories show a range of situations and experiences. 

Here are links to recent articles that have been in the media, about Autism and Fibrodysplasia Ossificans Progressiva, they illustrate different perspectives and disease experiences.

Other rare disease organisations from around the globe have collated a number of their local communities personal stories.

Also, for Rare Disease Day many people told their stories:

  • In 2013 in Australia they gathered stories, see them here
  • In 2011, an American based group with a global reach, Inspire, published a collection of members experiences about their journeys leading to a diagnosis. 
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