http://www.nzord.org.nzNZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseasesen-nzNew Zealand Organisation for Rare Disorders (NZORD)webmaster@nzord.org.nzwebmaster@nzord.org.nzSquiz Matrixhttp://www.nzord.org.nz/news_and_issues/releases_and_submissions/2012/new_zealand_rare_disease_day_28_february_20132012-12-21 10:03:56Support the Rare Gems in our communityhttp://www.nzord.org.nz/news_and_issues/newsletters/2012/6_28_november_20122012-12-02 07:20:14Putting patient and family interests into newborn screening criteria | Common themes as groups respond to Ministry consultation on payments to family carers | Two significant clinical trials with NZ connections | Plain packaging submission to Ministry of Health tobacco control team | Recommended reading: The Immortal Life of Henrietta Lacks, by Rebecca Skloothttp://www.nzord.org.nz/news_and_issues/releases_and_submissions/2012/common_themes_as_groups_respond_to_ministry_consultation_on_payments_to_family_carers2012-11-21 22:00:01Disappointment at lack of sound principles contained in policy options – November 2012http://www.nzord.org.nz/news_and_issues/releases_and_submissions/2012/screening_criteria_the_need_to_deal_with_new_developments_and_ethical_issues_in_newborn_metabolic_screening2012-11-21 21:40:58NZORD took the lead in publishing how family interests and ethics must influence screening policy – October 2012http://www.nzord.org.nz/news_and_issues/releases_and_submissions/2012/plain_packs_for_tobacco_are_supported_by_nzord2012-10-07 21:29:00Less tobacco consumption will free up health dollars – October 2012