New Zealand health and disability support and information groups for rare and common disorders.
Most have only the national office listed - local contacts are available through that source.

This page is copyright to NZORD.

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Acoustic Neuroma Association of New Zealand
Postal address: PO Box 222, Taumaranui
Phone: 07 896 7452
Email: acousticneuroma.info@nzord.org.nz

Addisons Disease Network (NZAN)
Postal address: PO Box 17 414, Greenlane, Auckland
Phone: 09 636 8238
Email: info@addisons.org.nz
Website: www.addisons.org.nz

ADDvocate - Web based information on Attention Deficit and Hyperactivity disorders
Postal address: PO Box 249, Tauranga
Phone: 07 577 0987
Email: addvocate.info@nzord.org.nz
Website: www.adhd.org.nz

ADHD Association - Support group for Attention Deficit and Hyperactivity disorders
Postal address: PO Box 51 675, Pakuranga, Auckland
Phone: 09 570 5646
Email: adhd.info@nzord.org.nz
Website: www.adhd.co.nz

Age Concern New Zealand
Postal address: PO Box 10 688, Wellington
Phone: 04 801 9338
Email: national.office@ageconcern.org.nz
Website: www.ageconcern.org.nz

Aids Foundation
Postal address: PO Box 6663, Wellesley St, Auckland
Freephone: 0800 802 437
Email: library@nzaf.org.nz
Website: www.nzaf.org.nz

Albinism Trust
Postal address: 7 Earl St, Levin
Phone: 06 368 8484
Email: albinism@inspire.net.nz
Website: www.albinism.org.nz/

Alcoholics Anonymous
Postal address: PO Box 6458, Wellington
Free help phone (24 hrs): 0800 229 6757
Office phone: 04 472 4250
Email: nzgso@xtra.co.nz
Website: www.alcoholics-anonymous.org.nz

ALD Foundation Trust – support for adrenoleukodystrophy and related X-linked disorders
Postal address: 75 Motutara Road, R.D.1, Muriwai
Phone: 09 411 9221
Email: ald.info@nzord.org.nz
Website: www.ald.org.nz

Allergy New Zealand
Postal address: PO Box 56 117, Dominion Rd, Auckland
Phone: 09 623 3912
Freephone: 0800 340 800
Email: mail@allergy.org.nz
Website: www.allergy.org.nz

Alpha-1 New Zealand - Support group for Alpha-1-Antitrypsin
Postal address: 50A Chatsworth Rd, Silverstream, Upper Hutt
Phone: 04 528 7050
Email: alpha1.info@nzord.org.nz
Website: www.alpha1.org.nz

Alzheimers New Zealand
Postal address: PO Box 3643, Wellington
Phone: 04 381 2362
Email: alzheimers@alzheimers.org.nz
Website: www.alzheimers.org.nz

Amputees Federation of NZ
Postal address: 213A Bay View Road, St Clair, Dunedin
Phone: 03 455 6347
Email: lorrstan@xtra.co.nz
Website: www.amputee.co.nz

Angelman New Zealand
Postal address: PO Box 128, Ngaruawahia
Phone: 07 824 7376
Email: angelman.info@nzord.org.nz

ANZMES – Associated New Zealand Myalgic Encephalopathy (Chronic Fatigue) Society
Postal address: PO Box 36 307, Northcote, Auckland
Phone: 09 269 6374
Email: info@anzmes.org.nz
Website: www.anzmes.org.nz

APECED Network – Support for Polyautoimmune Syndrome Type 1 (also called APS1)
Postal address: PO Box 17 414, Greenlane, Auckland
Phone: 09 636 8238
Email: info@empower.org.nz
Website: www.empower.org.nz

Apert Network – Support group for Apert and Cranio-Facial syndromes
Phone: 09 476 0251
Email: apert@apert.org.nz

Arachnoid Cyst Support Group
Postal address: 120 Tauhinu Rd, Miramar, Wellington
Phone: 04 977 5453
Email: arachnoidcyst.info@nzord.org.nz
Website: www.arachnoidcyst.org.nz

Arnold Chiari Malformation Support Group
Postal address: 3 Townend St, Waipara, North Canterbury 7447
Phone: 027 713 3221
Email: acm.info@nzord.org.nz
Website: www.acmsupport.org.nz

Arthritis Foundation of New Zealand
Postal address: PO Box 10 020, Wellington
Phone: 04 472 1427
Email: arthritis.info@nzord.org.nz
Website: www.arthritis.org.nz

Arthrogryposis Group of New Zealand (TAG-NZ)
Postal address: 57 Helmore St, Wanganui
Phone: 06 343 3394
Email: arthrogryposis.info@nzord.org.nz
Website: www.arthrogryposis.org.nz

ASAMS – Arachnoiditis Sufferers Action and Monitoring Society NZ
Postal address: PO Box 102, Wanganui 4540
Phone: 06 347 1176
Email: info@arachnoiditis.info
Website: www.arachnoiditis.info

Association of Blind Citizens – Self advocacy group for blind and vision impaired
Postal address: PO Box 7144, Wellington South
Phone: 04 389 0033
Email: abcnz.info@nzord.org.nz
Website: www.abcnz.org.nz

Asthma and Respiratory Foundation
Postal address: PO Box 1459, Wellington
Phone: 04 499 4592
Email: arf@asthmanz.co.nz
Website: www.asthmanz.co.nz

Asthma New Zealand
Postal address: PO Box 67 066, Mt Eden, Auckland
Phone: 09 623 0236
Email: asthma.info@nzord.org.nz
Website: www.asthma-nz.org.nz

Autism New Zealand
Postal address: PO Box 7305, Sydenham, Christchurch
Phone: 03 332 1038
Freephone 0800 288 476
Email: autism.info@nzord.org.nz
Website: www.autismnz.org.nz

Balance, New Zealand Bipolar Network – Support for those affected by bipolar disorder (manic depression)
Postal address: PO Box 13 266, Armagh, Christchurch 8141
Phone: 03 366 3631
Email: info@balance.org.nz
Website: www.balance.org.nz

Batten Disease Support Group C/- Lysosomal Diseases New Zealand
Postal address: 125 Cuba St, Petone, Lower Hutt City
Phone: 04 566 7707
Email: lysosomal.info@nzord.org.nz
Website: www.ldnz.org.nz

Beckwith-Wiedemann Children's Assn of NZ (Inc)
Postal Address: P O Box 37 344, Halswell, Christchurch
Phone: 03 322 5464
Email: bwcanz@bwcanz.org
Website www.bwcanz.org

Behcets Disease Support Group
Postal address: PO Box 117, Kaikohe
Phone: 09 401 0429
Email: behcets.info@nzord.org.nz
Website: www.behcets.org.nz

Biliary Atresia Support Group
Postal address: 53 Tiverton Rd, Avondale, Auckland
Phone: 09 820 4187
Email: biliaryatresia.info@nzord.org.nz

Blind Citizens, Association – see Association of Blind Citizens

Blind, Royal New Zealand Foundation of the – see Royal New Zealand Foundation of the Blind

Brain Injury Association of New Zealand
Postal address: PO Box 83, Albany Village, Auckland 0755
Phone: 09 414 5129
Email: national@brain-injury.org.nz
Website: www.brain-injury.org.nz

Breast Cancer Aotearoa Coalition
Postal Address: PO Box 90224, Auckland Mail Centre, Auckland 1142
Phone: 09 428 3385
Email: BCAC@breastcancer.org.nz
Website: www.breastcancer.org.nz

Breast Cancer Foundation, New Zealand – see New Zealand Breast Cancer Foundation

Brittle Bone Association of New Zealand
Postal address: 16 Rimu Rd, Mangere Bridge, Auckland
Phone: 09 634 3684
Email: brittlebone.info@nzord.org.nz
Website: www.geocities.com/athens/delphi/9895/

Burn Support Waikato – with contacts for all New Zealand
Postal address: PO Box 5042, Frankton, Hamilton
Phone: 07 889 7878
Email: info@burnsupport.org.nz
Website: www.burnsupport.org.nz

Cancer Society of New Zealand
Postal address: PO Box 10 847, Wellington
Phone: 04 494 7275
Email: admin@cancernz.org.nz
Website: www.cancernz.org.nz

Canteen – Supporting young people living with cancer.
Postal address: PO Box 56 072, Dominion Rd, Auckland
Freephone 0800 226 8336
Email: canteen.info@nzord.org.nz
Website: www.canteen.org.nz

Cardiac Inherited Diseases Group
Email: cidg.info@nzord.org.nz
Website: www.cidg.org

Carers New Zealand – Information and advocacy for family/whanau carers
Postal address: Freepost 3739, Mangonui, Far North
Phone: 09 406 0412
Email: info@carers.net.nz
Website: www.carers.net.nz

CCS New Zealand – Support, advocacy and services for people with physical disabilities
Postal address: PO Box 6349, Marion Square, Wellington
Phone: 04 384 5677
Email: info@no.ccs.org.nz
Website: www.ccs.org.nz

Cerebral Palsy Society
Postal address: PO Box 24 759, Royal Oak, Auckland
Freephone 0800 503 603
Email: cpsociety@cpsociety.org.nz
Website: www.cpsoc.org.nz

CHARGE Syndrome Association
Postal address: 16 Bideford St, New Plymouth
Phone: 06 757 9005
Email: charge.info@nzord.org.nz
Website: www.chargesyndrome.org.nz

Child Cancer Foundation
Postal address: PO Box 152, Auckland
Phone: 09 373 3670
Email: info@childcancer.org.nz
Website: www.childcancer.org.nz

Child Health Research Foundation
Postal address: PO Box 90 907, Auckland
Phone: 09 358 5180
Email: nchrf@childhealth.org.nz
Website: www.childhealth.org.nz

Chromosome18 Registry & Research Society (Australasia)
Postal address: "Gladsmuir" RD3 Middlemarch 9056
Phone: 03 464 3161
Email: chromosome18.info@nzord.org.nz
Website: www.chromosome18.org

Cleft New Zealand
Postal address: PO Box 13 385, Onehunga, Auckland
Phone: 0800 425 338
Email: info@cleft.org.nz
Website: www.cleft.org.nz

Cloud 9 Children's Foundation – Support for Asperger's Syndrome
Postal address: PO Box 51 176, Tawa
Phone: 04 232 4795
Email: foundation@entercloud9.com
Website: www.withyoueverystepoftheway.com

CMTexperienceNZ – support for Charcot Marie Tooth disorder
Postal address: 175 Gills Rd, Albany, Auckland
Phone: 09 415 3357
Email: CMT.info@nzord.org.nz
NZORD webpage for CMTexperienceNZ

Coeliac Society of New Zealand
Postal address: PO Box 35 742, Brown's Bay, Auckland
Phone: 09 820 5157
Email: coeliac.info@nzord.org.nz
Website: www.coeliac.co.nz

Congenital Adrenal Hyperplasia New Zealand
Postal address: PO Box 29 545, Fendalton Mall, Christchurch 8540
Phone: 03 358 4507
Email: CAHNZ.info@nzord.org.nz
Website: www.cah.org.nz

Congenital Cytomegalovirus Support Group
Postal address: 164 Neudorf Road, Upper Moutere RD2, Nelson
Phone: 03 543 2621
Email: cc.info@nzord.org.nz

Continence Association of New Zealand
Postal address: PO Box 270, Drury, Auckland
Freephone: 0800 650 659
Email: continence.info@nzord.org.nz
Website: www.continence.org.nz

Cornelia de Lange Syndrome Support Group
Postal address: 11 Winsomere Cres, Westmere, Auckland
Phone: 09 378 0720
Email: corneliadelange.info@nzord.org.nz

Cot Death Association
Postal address: PO Box 90 907, Auckland
Phone: 09 355 1488
Email: nzcda@childhealth.org.nz
Website: www.childhealth.org.nz

Cri du Chat Support Group of New Zealand
Postal address: PO Box 637, Whangarei
Phone: 09 459 1334
Email: criduchat.info@nzord.org.nz

Crohn's and Colitis Support Group
Postal address: PO Box 24 171, Royal Oak, Auckland
Phone: 09 636 7228
Freephone 0800 227 469
Email: crohnscolitis.info@nzord.org.nz
Website: www.ccsg.org.nz

Cystic Fibrosis Association of New Zealand
Postal address: PO Box 8241, Riccarton, Christchurch
Phone: 03 3418 024
Email: cysticfibrosis.info@nzord.org.nz
Website: www.cfnz.org.nz

Deaf Association of New Zealand
Postal address: PO Box 15 770, New Lynn, Auckland
Phone: 09 828 3282
Email: national@deaf.co.nz
Website: www.deaf.co.nz

Deaf Children, New Zealand Federation for – see New Zealand Federation for Deaf Children

Deaf, National Foundation for the – see National Foundation for the Deaf

Deafblind New Zealand
Postal address: PO Box 109 485, Newmarket, Auckland
Phone: 09 524 2940
Email: deafblind.info@nzord.org.nz
Website: www.deafblind.org.nz

DEBRA New Zealand – Support and research for Dystrophic Epidermolysis Bullosa
Postal address: 123 Daniel St, Newtown, Wellington
Phone: 04 389 7316
Email: debra.info@nzord.org.nz
Website: www.debra.org.nz

Diabetes New Zealand
Postal address: PO Box 12 441, Wellington
Phone: 04 499 7145
Email: info@diabetes.org.nz
Website: www.diabetes.org.nz

Diabetes Youth New Zealand
Postal address: 591 Pencarrow Rd, RD3, Hamilton
Phone: 07 823 0023
Email: contact@diabetesyouth.org.nz
Website: www.diabetesyouth.org.nz

Disabled Persons Assembly – see DPA (NZ) Inc

Doors Syndrome Support Group
Postal address: 110 Paihia Rd, One Tree Hill, Auckland
Phone: 09 525 3839
Email: doors.info@nzord.org.nz

Down Syndrome Association
Postal address: PO Box 4142, Auckland
Freephone: 0800 693 724
Email: national.coordinator@nzdsa.org.nz
Website: www.nzdsa.org.nz

DPA (NZ) Inc - Disabled Persons Assembly
Postal address: PO 27 524, Wellington
Phone/TTY: 04 801 9100
Email: gen@dpa.org.nz
Website: www.dpa.org.nz

Dyspraxia Support Group of New Zealand
Postal address: PO Box 20 292, Bishopdale, Christchurch
Phone: 03 359 7072
Email: dyspraxia.info@nzord.org.nz
Website: www.dyspraxia.org.nz

Dystonia Patient Network – see New Zealand Dystonia Patient Network

Early Menopause Support Group, New Zealand – see New Zealand Early Menopause Support Group

Eating Disorder Services (Wellington) - has contact details for other regions
Postal address: P O Box 13 807, Johnsonville, Wellington
Phone: 04 477 5011
Email: info@eatingdisorders.org.nz
Website: www.eatingdisorders.org.nz

Ectodermal Dysplasia Support Group
Postal address: 599 Hursthouse Rd, RD 9, Inglewood
Phone: 06 756 7055
Email: ectodermaldysplasia.info@nzord.org.nz

Ehlers-Danlos Foundation of New Zealand
Postal address: 368 Butler Road, RD 3, Waipawa 4273
Phone: 06 856 5577
Email: ehlersdanlos.info@nzord.org.nz
Website: www.edfnz.org.nz

Enable Information – Information service for people with disabilities
Postal address: PO Box 4547, Palmerston North
Freephone: 0800 17 1981
Email: info@enable.co.nz
Website: www.weka.net.nz

Endometriosis Foundation of New Zealand
Postal address: PO Box 1683, Palmerston North
Phone: 06 359 2613
Email: endometriosis.info@nzord.org.nz
Website: www.nzendo.co.nz

Enuresis and Encopresis Association, Kiwi – see KEEA

Epilepsy New Zealand
Postal address: PO Box 1074, Hamilton
Phone: 07 834 3556
Email: national@epilepsy.org.nz
Website: www.epilepsy.org.nz

Essential Tremor Support Group
Postal address: PO Box 45146, Waterloo, Lower Hutt 5042
Phone: 0508 873 667
Email: essentialtremor.info@nzord.org.nz
Website: www.essentialtremor.org.nz

Families of Spinal Muscular Atrophy NZ – see FSMA NZ

Family Planning Association New Zealand
Postal address: PO Box 11 515, Wellington
Freephone: 0800 4636 5463
Website: www.familyplanning.org.nz

Federation for Deaf Children, New Zealand – see New Zealand Federation for Deaf Children

Federation of New Zealand Ostomy Societies
Postal address: 96 Highcliff Rd, Dunedin
Phone: 03 454 5330
Email: ostomy.info@nzord.org.nz
Website: www.ostomyinternational.org/newzealand.html

Fertility New Zealand
Postal address: PO Box 12 049, Beckenham, Christchurch
Freephone: 0800 333 306
Email: contact.us@fertilitynz.org.nz
Website: www.fertilitynz.org.nz

Fetal Alcohol Network New Zealand
Postal address: PO Box 99 407, Newmarket, Auckland
Phone: 09 520 7037
Email: fannz@ahw.co.nz
Website: www.fan.org.nz

FHL Support Group – support for Familial Haemophagocytic Lymphohistiocytosis
Postal address: PO Box 403, Pukekohe
Phone: 09 238 8217
Email: fhl.info@nzord.org.nz

Floating Harbor Syndrome
Email: floatingharbor.info@nzord.org.nz

Foundation for Nager and Miller Syndromes
Postal address: 11B Acacia Place, Bell Block, New Plymouth
Phone: 06 755 1749
Email: nagermiller.info@nzord.org.nz
NZORD webpage for Foundation for Nager and Miller Syndromes

Foundation of the Blind, Royal New Zealand – see Royal New Zealand Foundation of the Blind

Fragile X Trust (New Zealand)
Postal address: 196 Taita Drive, Avalon 5010, Lower Hutt
Phone: 04 938 0552
Email: fragilex.info@nzord.org.nz
Website: www.fragilex.org.nz

FSMA NZ - Families of Spinal Muscular Atrophy NZ
Postal address: PO Box 4152, Christchurch
Phone: 09 446 3069
Email: newzealand@fsma.org
Website: www.smanz.org

Gaucher Association of New Zealand – c/- Lysosomal Diseases New Zealand
Postal address: 125 Cuba St, Petone, Lower Hutt City
Phone: 04 566 7707
Email: gaucher.info@nzord.org.nz
Website: www.ldnz.org.nz

Gastric Reflux Support Network, New Zealand
Postal address: PO Box 14 065, Enderley, Hamilton
Phone: 07 855 9350
Freephone 0800 380 517
Email: gastricreflux.info@nzord.org.nz
Website: www.cryingoverspiltmilk.co.nz

Give Life New Zealand – information about organ donation
Postal address: 296B Sunset Road, Mairangi Bay, Auckland
Phone: 027 285 2230
Email: info@givelife.org.nz
Website: www.givelife.org.nz

Glaucoma New Zealand
Postal address: Department of Ophthalmology, University of Auckland, Private Bag 92019, Auckland
Phone: 09 373 8779
Email: admin@glaucoma.org.nz
Website: www.glaucoma.org.nz

Granulosa Cell Tumour Foundation New Zealand
Postal address: PO Box 91 088, Auckland
Email: admin@gctf.org.nz
Website: www.gctf.org.nz

Graves Disease – see New Zealand Thyroid Disease Support Group

GROW – A 12 step programme for mental wellness
Postal address: PO Box 41 051, St Lukes, Auckland
Phone: 09 846 6869
Email: auckland@grow.org.nz

Guillain Barre Syndrome Support Group
Postal address: 27 Grenville St, New Plymouth
Phone: 06 751 1014
Email: guillainbarre.info@nzord.org.nz
Website: www.gbsnz.org.nz

Haemochromatosis Society of New Zealand
Postal address: PO Box 23 072, Papatoetoe, Auckland
Phone: 09 269 3115
Email: info@ironz.org.nz
Website: www.ironz.org.nz

Haemophilia Foundation of New Zealand
Postal address: PO Box 16 582, Hornby, Christchurch
Phone: 03 344 5204
Email: info@haemophilia.org.nz
Website: www.haemophilia.org.nz

Head Injury Society of New Zealand
Postal address: PO Box 1168, Hamilton
Freephone: 0508 444 357
Email: nat-office@head-injury.org.nz
Website: www.head-injury.org.nz

Hearing Association of New Zealand
Postal address: PO Box 5876, Lambton Quay, Wellington
Phone: 04 939 6754
Email: office@hearing.org.nz
Website: www.hearing.org.nz

Heart Children Incorporated
Postal address: PO Box 108 034, Symonds St, Auckland
Phone: 09 377 9950
Email: heartchildren@heartchildren.org.nz
Website: www.heartchildren.org.nz

Heart Foundation, National – see National Heart Foundation

Hepatitis-C Support Group of New Zealand
Postal address: PO Box 90 563, Auckland
Freephone: 0800 224 372
Email: support@hepc.org.nz
Website: www.hepc.org.nz

Hepatitis Foundation
Postal address: PO Box 647, Whakatane
Freephone 0800 332 010
Email: hepteam@hepfoundation.org.nz
Website: www.hepfoundation.org.nz

Herpes Foundation
Postal address: PO Box 2437, Auckland
Freephone: 0508 11 12 13
Email: info@herpes.org.nz
Website: www.herpes.org.nz

Hidradenitis Suppurativa Aus/NZ Support Group
Postal address: PO Box 1008, Caboolture, Qld, Australia
Email: hs.info@nzord.org.nz
Website: au.groups.yahoo.com/group/hsausnz

Hospice New Zealand
Postal address: PO Box 12 481, Wellington
Phone: 04 499 0266
Email: admin@hospice.org.nz
Website: www.hospice.org.nz

HPV Project – Support and education about human papillomavirus
Postal address: PO Box 2437, Auckland
Freephone: 0508 11 12 13
Email: info@hpv.org.nz
Website: www.hpv.org.nz

Huntington's Disease Association (Auckland) – has contacts for other regions
Postal address: PO Box 16 238, Sandringham, Auckland
FreePhone: 0800 432 825
Email: huntingtons.info@nzord.org.nz
Website: www.huntingtons.org.nz

Hypothalamic Hamartoma Support Group
Postal address: c/- 125 Cuba St, Petone
Phone: 04 566 7707
Email: hh.info@nzord.org.nz

Immune Deficiencies Foundation of New Zealand / Kids Foundation
Postal address: PO Box 75 076, Manurewa, Auckland
Freephone: 0508 300 600
Email: gm@idfnz.org.nz
Website: www.idfnz.org.nz

IHC New Zealand – advocacy and support for intellectual disability
Postal address: PO Box 4155, Wellington
Phone: 04 472 2247
Email: webmaster@ihc.org.nz
Website: www.ihc.org.nz

Interstitial Cystitis Support Group
Postal address: PO Box 33 264, Christchurch
Phone 03 347 9007
Email: weedot@xtra.co.nz

Itchy Kids New Zealand – support for families living with eczema
Phone: 04 386 1155
Email: itchy@itchykids.org.nz
Website: www.itchykids.org.nz

JDMS Friends – support for Juvenile Dermatomyositis
Postal address: 20 Jupiter Street, Palmerston North
Phone: 06 353 2938
Email: dermatomyositis.info@nzord.org.nz
Website: www.jdmsfriends.org.nz

Kabuki Syndrome Support Group
Postal address: 315 Seaview Road, Stoke, Nelson
Phone: 03 547 2310
Email: kabuki.info@nzord.org.nz
Online forum: kabukisyndromenz.proboards.com/index.cgi

KEEA – Kiwi Enuresis and Encopresis Association – support for bedwetting and soiling problems
Postal address: PO Box 1123, Nelson
Freephone: 0800 533 269
Email: info@keea.org.nz
Website: www.keea.org.nz

Kidney Foundation, New Zealand – see New Zealand Kidney Foundation

Kidney Kids of New Zealand
Postal address: PO Box 13 732, Onehunga, Auckland
Phone: 0800 215 437
Email: support@kidneykids.org.nz
Website: www.kidneykids.org.nz

La Leche League New Zealand – breastfeeding information and support
Postal address: PO Box 50 780, Porirua
Phone: 04 471 0690
Email: admin@lalecheleague.org.nz
Website: www.lalecheleague.org.nz

LAM Charitable Trust – support group for Lymphangeoleiomyomatosis disease
Postal address: 8 Paget St, Freemans Bay, Auckland
Phone: 09 376 4936
Email: lam.info@nzord.org.nz
Website: www.lam.org.nz

Learning and Behaviour Charitable Trust – support group for Dyslexia and Attention Deficit/Hyperactivity disorders
Postal address: PO Box 40 161, Upper Hutt
Phone: 04 567 7284
Email: lbctnz.info@nzord.org.nz
Website: www.lbctnz.co.nz

Leukaemia and Blood Foundation
Postal address: PO Box 99 182, Newmarket, Auckland
Phone: 09 638 3556
Email: lbf@leukaemia.org.nz
Website: www.leukaemia.org.nz

Leukodystrophy Support Group
Postal address: 18 Thames St, Mosgiel
Phone 03 489 1209
Email: leukodystrophy.info@nzord.org.nz

Lichen Sclerosis Support Group
Email: ls.info@nzord.org.nz

Little Limbs Support Group
Postal address: 30 Ennismore Rd, Mt Albert, Auckland
Phone: 09 828 1108
Email: littlelimbs.info@nzord.org.nz

Little People of New Zealand
Postal address: 1230 Omanawa Road, RD1, Tauranga
Phone: 07 543 4370
Email: littlepeople.info@nzord.org.nz
Website: www.littlepeople.org.nz

Liver Transplant Recipients Group, New Zealand – see New Zealand Liver Transplant Recipients Group

Lupus Support Group
Postal address: PO Box 35 233, Browns Bay, Auckland
Phone: 09 533 9454
Email: lupus.info@nzord.org.nz
Website: www.lupus.org.nz

Lymphoedema Support Network (Auckland) – has contacts for other areas
Postal address: 4 Acorn St, Royal Oak, Auckland 1023
Phone: 09 625 6463
Email: lymphoedema.info@nzord.org.nz
Website: www.lymphoedema.org.nz

Lysosomal Diseases New Zealand
Postal address: 125 Cuba St, Petone, Lower Hutt City
Phone: 04 566 7707
Email: lysosomal.info@nzord.org.nz
Website: www.ldnz.org.nz

MAGIC Foundation New Zealand – support for children with growth issues and their families
Postal address: 75 Beauchamp St, Karori, Wellington
Phone: 04 476 9896
Email: magic.info@nzord.org.nz
Website: www.magicnz.org.nz

Mastocytosis Network of NZ – support for Mastocytosis and disorders of mast-cell activation
Postal address: 363 Port Underwood Rd, Picton 7372
Phone: 03 573 7780
Email: mastocytosis.info@nzord.org.nz
Website: www.mastokids.org

Meniere's Support Group
Postal address: PO Box 19 038, Courtenay Place, Wellington
Phone: 04 384 7017
Email: menieres.info@nzord.org.nz

Meningitis Trust of New Zealand, National – see National Meningitis Trust of New Zealand

Mental Health Foundation – information resources and promotion of mental health
Postal address: PO Box 10051, Dominion Road, Auckland
Phone: 09 300 7030
Email: resource@mentalhealth.org.nz
Website: www.mentalhealth.org.nz

Migraine Sufferers' Support Group
Postal address: PO Box 40 545, Auckland
Phone: 09 482 1331
Email: migraine.info@nzord.org.nz
Website: www.migraine.co.nz

Miscarriage Support Group (Auckland) – has contact details for other regions
Postal address: PO Box 141 011, Ponsonby, Auckland
Phone: 09 378 4060
Email: support@miscarriagesupport.org.nz
Website: www.miscarriagesupport.org.nz

Moebius and Facial Paralysis Support Group of Australasia
Postal address: 1006A Maraekakaho Rd, Hastings
Phone: 027 256 3855
Email: moebius.info@nzord.org.nz
Website: groups.msn.com/kidswithfacialparalysis

Motor Neurone Disease Association
Postal address: PO Box 24 036, Royal Oak, Auckland 1345
Phone: 09 624 2148
Email: admin@mnda.org.nz
Website: www.mnda.org.nz

Multiple Endocrine Neoplasia Support Group
Postal address: 13 Weybridge Cres, Glen Innes, Auckland.
Phone: 09 521 3542
Email: endocrineneoplasia.info@nzord.org.nz
NZORD webpage for Multiple Endocrine Neoplasia Support Group

Multiple Sclerosis Society of New Zealand
Postal address: PO Box 2627, Wellington
Phone: 04 499 4677
Email: info@msnz.org.nz
Website: www.msnz.org.nz

Muscular Dystrophy Association of New Zealand
Postal address: PO Box 16 238, Sandringham, Auckland
Freephone: 0800 800 337
Email: info@mda.org.nz
Website: www.mda.org.nz

Myalgic Encephalopathy (Chronic Fatigue) Society, Associated New Zealand – see ANZMES

Myasthenic Gravis Support Group – Group in recess – contacts via Muscular Dystrophy Association
Postal address: PO Box 16 238, Sandringham, Auckland
Freephone: 0800 800 337
Email: info@mda.org.nz
Website: www.mda.org.nz

Myeloma Matters
Postal address: 17 Richard St, Titahi Bay
Phone: 04 236 7564
Email: info@mywell.org.nz
Website: www.myelomamatters.org.nz

Myelodysplastic Syndrome Support Group
Postal address: c/- Leukaemia and Blood Foundation, PO Box 99 182, Newmarket, Auckland
Phone: 09 638 3556
Email: lbf@leukaemia.org.nz
Website: www.leukaemia.org.nz

Narcolepsy Support Group of New Zealand
Phone: 07 867 7891
Email: narcolepsy.info@nzord.org.nz
Website: www.narcolepsy.org.nz

Nager and Miller Syndromes, Foundation for – see Foundation for Nager and Miller Syndromes

National Foundation for the Deaf
Postal address: PO Box 5593, Wellesley St, Auckland
Freephone 0800 867 446
Email: enquiries@nfd.org.nz
Website: www.nfd.org.nz

National Heart Foundation
Postal address: PO Box 17 160, Greenlane, Auckland
Phone: 09 571 9191
Email: Info@nhf.org.nz
Website: www.nhf.org.nz

National Meningitis Trust of New Zealand
Postal address: PO Box 27 258, Mt Roskill, Auckland
Phone: 09 375 8620
Email: meningitis.info@nzord.org.nz

Natural Fertility New Zealand
Postal address: PO Box 205, Wellington
Phone: 04 472 6436
Email: admin@naturalfertility.co.nz
Website: www.naturalfertility.co.nz

Neurofibromatosis Association of New Zealand
Postal address: 23 Waimahanga Rd, Onerahi, Whangarei
Phone: 09 436 5211
Email: neurofibromatosis.info@nzord.org.nz
Website: www.nfnz.org.nz

Neurological Foundation
Postal address: PO Box 110 022, Auckland
Freephone: 0508 272 467
Email: admin@neurological.org.nz
Website: www.neurological.org.nz

New Zealand Breast Cancer Foundation
Postal address: PO Box 99 650, Newmarket, Auckland
Freephone 0800 902 732
Email: enquiries@nzbcf.org.nz
Website: www.nzbcf.org.nz

New Zealand Dystonia Patient Network
Postal address: PO Box 305 375, Triton Plaza, North Shore 0757
Email: info@dystonia.org.nz
Website: www.dystonia.org.nz

New Zealand Early Menopause Support Group
Postal address: 3 Luxor Place, Massey, Auckland
Phone: 09 833 3908
Email: nzem.info@nzord.org.nz
Website: www.earlymenopause.org.nz

New Zealand Federation for Deaf Children
Postal address: PO Box 18 868, New Brighton, Christchurch, 8641
Freephone: 0800 332 324
Email: deafchildren@xtra.co.nz
Website: www.deafchildren.org.nz

New Zealand Kidney Foundation
Postal address: PO Box 139, Christchurch
Freephone: 0800 543 639
Email: info@nzkidneyfoundation.co.nz
Website: www.nzkidneyfoundation.co.nz

New Zealand Liver Transplant Recipients Group
C/- Liver Transplant Unit, Auckland Hospital, Private Bag 92 024, Auckland
Phone: 09 307 4949 x 6436
Email: aklivert@adhb.govt.nz
Website: www.livers.org.nz

New Zealand Spinal Trust
Postal address: Private Bag 4708, Christchurch
Phone: 03 383 6881
Email: info@nzspinaltrust.org.nz
Website: www.nzspinaltrust.org.nz

New Zealand Thyroid Disease Support Group
Postal Address: 2/23 Balmain Road, Birkenhead, North Shore, Auckland
Phone: 09 480 2680
Email: thyroid.info@nzord.org.nz
Website: www.thyroidsupport.org.nz

New Zealand Tinnitus Association
Postal address: PO Box 334 007, Sunnynook Post Shop, Auckland
Phone: 09 449 1019
Email: tinnitus.info@nzord.org.nz
Website: www.tinnitus.org.nz

New Zealand VIEW – Vision Impaired Empowering Women support group
Postal address: PO Box 17 107, Karori, Wellington
Phone: 04 472 9490
Email: nzview.info@nzord.org.nz

Ngati Kaapoo – Support group for blind Maori
906 Francis Hicks Ave, Raureka, Hastings
Freephone 0800 770 990
Email: info@kapomaori.com
Website: www.kapomaori.com

Non-Orally Fed Childrens' Support Group
Postal address: 138 Sunset Rd, Glenfield, Auckland
Phone: 09 444 5613
Email: nonorallyfed.info@nzord.org.nz

Osteoporosis New Zealand
Postal address: PO Box 688, Wellington
Phone: 04 499 4862
Email: info@osteoporosis.org.nz
Website: www.osteoporosis.org.nz

Overeaters Anonymous
Email: info@oaregion10.org
Website: www.oaregion10.org

Paget's Disease Support Group
Postal address: c/- Osteoporosis Research Unit, Auckland Hospital, PO Box 92 024, Auckland
Phone: 09 307 8970
Email: pagets.info@nzord.org.nz

Pain Action in New Zealand
Postal address: PO Box 32 074, Christchurch
Phone: 03 366 0716
Email: painz.info@nzord.org.nz
Website: crash.ihug.co.nz/~procter/PAINZ.HTM

Parents of Vision Impaired New Zealand
Postal address: PO Box 366 Waikato Mail Centre, Hamilton 3240
Freephone: 0800 312 019
Email: pvi.info@nzord.org.nz
Website: www.pvi.org.nz

Parent to Parent New Zealand - support to parents of children with special needs
Postal address: PO Box 234, Waikato Mail Centre
Phone: 0508 236 236
Email: p2p.info@nzord.org.nz
Website: www.parent2parent.org.nz

Parkinsons New Zealand
Postal address: PO Box 10 392, Wellington
Freephone: 0800 473 4636
Email: parkinsons.info@nzord.org.nz
Website: www.parkinsons.org.nz

People First – by and for people with intellectual disabilities
Postal address: PO Box 9199, Marion Square, Wellington
Freephone: 0800 206 070
Email: mail@peoplefirst.org.nz
Website: www.peoplefirst.org.nz

Personal Advocacy Trust – support for people with intellectual disability
Postal address: PO Box 30 469, Lower Hutt
Phone 04 385 9175
Email: patrust@paradise.net.nz
NZORD webpage for Personal Advocacy Trust

Perthes Support Group
Phone: 027 474 2128
Email: perthesnz@yahoo.com.au
Website: www.perthesnz.bravehost.com

Phace Syndrome Support Group
Postal address: 2 Swart Lane, Fairfield, Hamilton
Phone: 07 853 7081
Email: phace.info@nzord.org.nz
Website: phacesyndromecommunity.activeboard.com/

Phobic Trust of New Zealand
Postal address: PO Box 41 133, St Lukes, Auckland
Freephone: 0800 1426 94389
Email: clinic@phobic.org.nz
Website: www.phobic.org.nz

PKU New Zealand Charitable Trust
Postal address: c/- PO Box 210, Nelson
Phone: 03 960 2335
Email: pku.info@nzord.org.nz

Plunket Society, Royal New Zealand – see Royal New Zealand Plunket Society

PNP – Post Natal Psychosis Support Group
Postal address: PO Box 38 069, Howick, Auckland
Phone: 09 449 1011
Email: pnp.info@nzord.org.nz
Website: www.pnpsupport.org.nz

Porphyria Support Group
Postal address: 10 Muir Ave, Halswell, Christchurch
Phone: 03 322 8877
Email: porphyria.info@nzord.org.nz
Website: www.porphyria.org.nz

Positive Women – support for women and families living with HIV/AIDS
Postal address: 1/3 Poynton Terrace, Newton, Auckland
Freephone: 0800 769 848
Email: positivewomen@xtra.co.nz
Website: www.positivewomen.co.nz

Post Natal Psychosis Support Group – see PNP

Post-Polio Support Society of New Zealand Inc
Postal address: PO Box 249, Oamaru, 8915
Freephone: 0800 476 546 (0800 4 POLIO)
Email: postpolio.info@nzord.org.nz
Website: www.postpolio.org.nz

Prader-Willi Syndrome Association of New Zealand
Postal address: PO Box 143, Masterton
Freephone: 0800 479 743
Email: praderwilli.info@nzord.org.nz
Website: pws.org.nz

Prostate Cancer Foundation of New Zealand
Postal address: 14 Corinth St, Remuera, Auckland
Phone: 09 523 1753
Email: nationaloffice@prostate.org.nz
Website: www.prostate.org.nz

Pseudotumor Cerebri/Intracranial Hypertension Support Group
Postal Address: 54 Beach Valley Rd, Piha, Waitakere
Phone: 021 969 924
Email: pcih.info@nzord.org.nz

Psoriasis Association (Southland) - has contacts for other areas
Postal address: 266 Conyers St, Invercargill, 9812
Phone: 03 216 8662
Email: psoriasis.info@nzord.org.nz
Website: www.psoriasis.org.nz

PSP Support Network of New Zealand – support for Progressive Supranuclear Palsy
Postal address: 25 Gilligan Close, Wanganui
Phone: 06 345 2211
Email: psp.info@nzord.org.nz

PXE International – support for Pseudoxanthoma Elasticum
Postal address: 10 722 The Terrace, Wellington
Phone: 027 457 8123
Email: pxe.info@nzord.org.nz
Website: www.pxe.org

Restless Legs Syndrome Support Group
Postal Address: 22 Greenhill Rd, Annesbrook, Nelson
Phone: 03 548 6398
Email: restlesslegs.info@nzord.org.nz

Retina New Zealand
Postal address: PO Box 2232, Raumati Beach, Paraparaumu
Phone: 0800 233 833 or 04 299 1801
Email: retina@retina.org.nz
Website: www.retina.org.nz

Rett New Zealand – support for Rett Syndrome
Postal address: PO Box 28 049, Wellington
Phone: 04 475 9265
Email: rett.info@nzord.org.nz
Website: www.rettsyndrome.org.nz

Royal New Zealand Foundation of the Blind
Postal address: Private Bag 99 941, Newmarket, Auckland 1149
Freephone: 0800 243 333
Email: general@rnzfb.org.nz
Website: www.rnzfb.org.nz

Royal New Zealand Plunket Society – support and information on child and family health
Postal address: PO Box 5474, Wellington
Phone: 04 471 0177
Email: plunket@plunket.org.nz
Website: www.plunket.org.nz

SAFDA – Support After Foetal Diagnosis of Abnormality
Email: safda.info@nzord.org.nz

SANDS New Zealand – Stillbirth and Newborn Death Support
Postal address: PO Box 13 435, Johnsonville, Wellington
Phone: 04 478 0895
Email: contact@sands.org.nz
Website: www.sands.org.nz

Save Sight Society
Postal address: PO Box 643, New Plymouth
Phone: 06 758 3553
Email: info@savesightsociety.org.nz
Website: www.savesightsociety.org.nz

Schleroderma Support Group – contacts via Arthritis Foundation
Postal address: PO Box 10 020, Wellington
Phone: 04 472 1427
Email: schleroderma.info@nzord.org.nz
Website: www.arthritis.org.nz

SCIPAR – umbrella group for Spinal Cord Injury, Pain and Arachnoiditis
Postal address: 3 Gladstone St, Foxton 5551
Phone: 06 363 6064
Email: scpiar.info@nzord.org.nz

Selective Mutism Parent Support Group
Email: sm.info@nzord.org.nz

SF New Zealand - Supporting families of people experiencing major mental illness.
Website: www.sfnat.org.nz

Sjogren's Syndrome New Zealand
Postal address: PO Box 25 153, St Helliers, Auckland
Phone: 09 528 6384
Email: sjogrens.info@nzord.org.nz
Website: www.sjogrensnewzealand.co.nz

Skylight Trust – counselling for grief and loss for children and their families
Postal address: PO Box 7309, Wellington South
Freephone: 0800 299 100
Email: info@skylight-trust.org.nz
Website: www.skylight.org.nz

Sleep Apnoea Association of New Zealand
Postal address: PO Box 72 852, Papakura, Auckland
Phone: 09 482 1929
Email: enquiries@sleepapnoeanz.org.nz
Website: www.sleepapnoeanz.org.nz

SOFT – support group for Trisomy 13/18
Postal address: 32 Campbell St, Wanganui
Phone: 06 348 4998
Email: soft.info@nzord.org.nz

Spasmodic Dysphonia Support Group
Postal address: PO Box 305 375, Triton Plaza, North Shore 0757
Email: info@dystonia.org.nz
Website: www.dystonia.org.nz

SpeakEasy – support for people who stutter
Postal address: 33 Barclay St, Dunedin
Phone: 09 818 6993
Email: gdabb@paradise.co.nz
Website: www.speakeasynz.org.nz

SPELD – support group for Dyslexia and other learning disabilities
Postal address: PO Box 25, Dargaville
Phone: 09 439 5955
Email: speld.info@nzord.org.nz
Website: www.speld.org.nz

Spinal Trust, New Zealand – see New Zealand Spinal Trust

SPINZ – Suicide Prevention Information New Zealand
PO Box 10 318, Dominion Rd, Auckland
Phone: 09 300 7035
Email: info@spinz.org.nz
Website: www.spinz.org.nz

St John Caring Caller – support for those who are housebound or live alone
Freephone 0800 780 780
Email: enquiries@stjohn.org.nz
Website: www.stjohn.org.nz/products/caring_caller.aspx

Stroke Foundation of New Zealand
Postal address: PO Box 12 482, Wellington
Freephone: 0800 787 653
Email: strokenz@stroke.org.nz
Website: http://www.stroke.org.nz

Suicide Prevention Information New Zealand – see SPINZ

Superficial Siderosis Support Group
Postal address: C/- Mr D Hill, 9.O RD, Oamaru 9495
Phone/fax: 03 439 5631
Email: sssurvivors@clear.net.nz
Website: www.superficialsiderosis.org.nz

Support After Foetal Diagnosis of Abnormality – see SAFDA

Syringomyelia Support Group
Postal address: 11 Tothill St, New Plymouth
Phone: 06 753 6519
Email: syringomyelia.info@nzord.org.nz
Website: www.syringonz.org.nz

TABS New Zealand – support for post traumatic stress disorder after childbirth
Postal address: PO Box 18 002, Glen Innes, Auckland
Email: tabs.info@nzord.org.nz
Website: www.tabs.org.nz

Thyroid Disease Support Group, New Zealand – see New Zealand Thyroid Disease Support Group

Tinnitus Association, New Zealand – see New Zealand Tinnitus Association

Tourette Syndrome Support Group
Postal address: 258 Kennedy Rd, Napier
Phone: 06 843 0024
Email: tourette.info@nzord.org.nz

Tracheostomy Childrens' Support Group
Postal address: 138 Sunset Rd, Glenfield, Auckland
Phone: 09 444 5613
Email: tracheostomychildren.info@nzord.org.nz

Transverse Myelitis Support Group
Postal address: P O Box 95 087, Swanson, Auckland
Phone: 09 810 9807
Email: transversemyelitis.info@nzord.org.nz
Website: www.myelitis.org

Tuberous Sclerosis New Zealand
Postal address: 36 Salisbury Rd, Birkdale, Auckland
Phone: 09 483 5392
Email: tuberoussclerosis.info@nzord.org.nz
Website: www.atss.org.au/nzts

Turner Syndrome Society of New Zealand
Postal address: PO Box 404, Waipukurau
Phone: 06 858 5486
Email: turner.info@nzord.org.nz

Vaxnet – The New Zealand Vaccination Network
Phone: 021 102 0003
Email: simon@vaxnet.org.nz
Website: www.vaxnet.org.nz

VCFS Support Group – support for Velo Cardio Facial Syndrome
Postal address: c/- Parent and Family Resource Centre, PO Box 13385 , Onehunga, Auckland
Phone 09 636 0351 (office hours)
Email: vcfs.info@nzord.org.nz
Website: www.vcfs.org.nz

Vein of Galen Malformation Support Group
Postal address: 18 Eastview Grove, Normandale, Lower Hutt, 5010
Phone: 04 589 4664
Email: vgm.info@nzord.org.nz
Webpage: www.veinofgalen.org.nz

VHL Family Alliance New Zealand – support for Von Hippel-Lindau Disease
Postal address: 3B Luana Way, Howick, Auckland
Phone: 09 534 8098
Email: vhl.info@nzord.org.nz
Website: www.vhl.org.nz

VIEW, New Zealand – see New Zealand VIEW

Wegeners Granulomatosis Support Group
Postal address: 2a Fairclough Road, Beach Haven, North Shore, Auckland
Phone: 027 277 8775
Email: wg.info@nzord.org.nz
Website: www.wegeners.org.nz

Williams Syndrome Association
Postal address: Sonneland, Ngaio Bay, French Pass, RD3, Nelson
Phone: 03 576 5287
Email: williams.info@nzord.org.nz
Website: www.williams-syndrome.org.nz

Womens Health Action
Postal address: PO Box 9947, Newmarket, Auckland
Phone: 09 520 5295
Email: info@womens-health.org.nz 
Website: www.womens-health.org.nz

XLH Network - Support for X-linked Hypophosphatemia
Postal address: Flat 1/77 Fairfield Avenue, Addington, Christchurch
Phone: 03 980 0535
Email: xlh.info@nzord.org.nz
Website: http://www.XLHNetwork.org

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