Contact Us

New Zealand Organisation for Rare Disorders

PO Box 38-538,

Wellington Mail Centre

Phone: +64 4 471 2226

Email:

Charities Commission Registration CC22512

Support Groups

New Zealand health and disability support and information groups for rare and common disorders.
Most have only the national office listed - local contacts are available through that source.

This page is copyright to NZORD.

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

@Heart - Supporting heart kids through life
Postal address: PO Box 108 034, Symonds St, Auckland 1150
Phone: 09 377 9950
Freephone: 0800-543 943 (0800 KIDZ HEARTS)
Email: info@heartnz.org.nz
Website: www.heartnz.org.nz

Acoustic Neuroma Association of New Zealand
Postal address: PO Box 222, Taumaranui
Phone: 07 896 7452
Email: info@acousticneuroma.org.nz
Website: www.acousticneuroma.org.nz

Acromegaly Society, The New Zealand
Postal address: PO Box 302, Morrinsville 3304
Phone: 021 293 5506
Email: info@acromegaly.org.nz
Website: www.acromegaly.org.nz

ADD NZ Trust
Postal address: 2 Rhine Street, Island Bay, Wellington 6023
Phone: 04 383 5061
Email: addtrust@xtra.co.nz
Website: www.addnz.org.nz

Addisons Disease Network (NZAN)
Postal address: PO Box 17 414, Greenlane, Auckland
Phone: 09 636 8238
Email: info@addisons.org.nz
Website: www.addisons.org.nz

ADHD Association - Support group for Attention Deficit and Hyperactivity disorders
Postal address: PO Box 9063, Newmarket 1149, Auckland
Phone: 09 625 1754
Email: adhd@clear.net.nz
Website: www.adhd.org.nz

Age Concern New Zealand
Postal address: PO Box 10 688, Wellington 6143
Phone: 04 801 9338
Email: national.office@ageconcern.org.nz
Website: www.ageconcern.org.nz

Aids Foundation
Postal address: PO Box 6663, Wellesley St, Auckland
Phone: 0800 802 437
Email: library@nzaf.org.nz
Website: www.nzaf.org.nz

Albinism Trust
Postal address: 7 Earl St, Levin 5510
Phone: 06 368 8484
Email: albinism@inspire.net.nz
Website: www.albinism.org.nz/

Alcoholics Anonymous
Postal address: PO Box 6458, Wellington 6141
Phone: 04 472 4250
Freephone: 0800 229 6757
Email: nzgso@xtra.co.nz
Website: www.aa.org.nz

ALD Foundation Trust - support for adrenoleukodystrophy and related X-linked disorders
Postal address: 75 Motutara Road, R.D.1, Muriwai
Phone: 09 411 9221
Email: ald.info@nzord.org.nz
Website: www.ald.org.nz

Allergy New Zealand
Postal address: PO Box 56 117, Dominion Rd, Auckland
Phone: 09 623 3912
Freephone: 0800 340 800
Email: membership@allergy.org.nz
Website: www.allergy.org.nz

Alpha-1 New Zealand - Support group for Alpha-1-Antitrypsin
Postal address: 50A Chatsworth Rd, Silverstream, Upper Hutt
Phone: 04 528 7050
Email: alpha1.info@nzord.org.nz
Website: www.alpha1.org.nz

Alstrom Syndrome International - New Zealand Chapter
Postal address: 6A Parvin Place, Pukekohe, Auckland 2120
Phone: 09 238 9109
Email: alstrom.info@nzord.org.nz
Website: www.alstrom.org

Alzheimers New Zealand
Postal address: P.O. Box 39393, Wellington
Phone: 04 381 2362
Email: nationaloffice@alzheimers.org.nz
Website: www.alzheimers.org.nz

Amputees Federation of NZ
Postal address: 213A Bay View Road, St Clair, Dunedin
Phone: 03 455 6347
Email: info@amputee.co.nz
Website: www.amputee.co.nz

Angelman Network
Postal address: 18 Atamira Close, Churton Park, Wellington 6037
Phone: 09 555 3882 or 021 1382878
Email: angelmannetwork@gmail.com
Website: www.angelmannetwork.com

ANZMES - Associated New Zealand Myalgic Encephalopathy (Chronic Fatigue) Society
Postal address: PO Box 36 307, Northcote, Auckland
Phone: 09 269 6374
Email: info@anzmes.org.nz
Website: www.anzmes.org.nz

APECED Network - Support for Polyautoimmune Syndrome Type 1 (also called APS1)
Postal address: PO Box 17 414, Greenlane, Auckland
Phone: 09 636 8238
Email: apeced.info@nzord.org.nz
Website: www.empower.org.nz

Apert Network - Support group for Apert and Cranio-Facial syndromes
Phone: 09 476 0251
Email: apert@apert.org.nz

Aphasia New Zealand Charitable Trust
Postal address: C/- University of Auckland, Tamaki Campus, Private Bag 92019, Auckland Mail Centre 1142
Freephone: 0508 274 274
Email: info@aphasia.org.nz
Website: www.aphasia.org.nz

Arachnoid Cyst Information Network
Email: arachnoidcyst.info@nzord.org.nz
Website: www.arachnoidcyst.org.nz

Arnold Chiari Malformation Support Group
Postal address: 3 Townend St, Waipara, North Canterbury 7447
Phone: 027 713 3221
Email: acm.info@nzord.org.nz
Website: www.acmsupport.org.nz

Arteriovenous Malformations Support Group
Postal address: 31B Arthur Street, Ellerslie, Auckland
Phone: 021 1867106
Email: AVM.info@nzord.org.nz

Arthritis Foundation of New Zealand
Postal address: PO Box 10 020, The Terrace, Wellington
Phone: 04 472 1427
Freephone: 0800 663 463
Email: arthritis.info@nzord.org.nz
Website: www.arthritis.org.nz

Arthrogryposis Group of New Zealand (TAG-NZ)
Postal address: 57 Helmore St, Wanganui
Phone: 06 343 3394
Email: arthrogryposis.info@nzord.org.nz
Website: www.arthrogryposis.org.nz

ASAMS - Arachnoiditis Sufferers Action and Monitoring Society NZ
Postal address: PO Box 102, Wanganui 4540
Phone: 06 347 1176
Email: info@arachnoiditis.info
Website: www.arachnoiditis.info

Association of Blind Citizens
Postal address: PO Box 7144, Wellington South
Phone: 04 389 0033
Freephone: 0800-ABC-NZ-INC (0800 222 694)
Email: enquiries@abcnz.org.nz
Website: www.abcnz.org.nz

Asthma and Respiratory Foundation
Postal address: PO Box 1459, Wellington
Phone: 04 499 4592
Email: info@asthmafoundation.org.nz
Website: www.asthmanz.co.nz

Asthma New Zealand
Postal address: PO Box 67 066, Mt Eden, Auckland
Phone: 09 623 0236
Email: anz@asthma-nz.org.nz
Website: www.asthma-nz.org.nz

Autism New Zealand
Postal address: PO Box 6455, Te Aro, Wellington 6141
Phone: 04 803 3501
Freephone: 0800 288 476
Email: info@autismnz.org.nz
Website: www.autismnz.org.nz

AutoImmune New Zealand - Support for New Zealanders with auto immune disorders
Postal address: 35 Warwick Avenue, Westmere, Auckland 1022
Phone: 021 2444 544
Email: info@autoimmune.org.nz
Website: www.autoimmune.org.nz

Balance, New Zealand Bipolar Network - Support for those affected by bipolar disorder (manic depression)
Postal address: PO Box 13 266, Armagh, Christchurch 8141
Phone: 03 366 3631
Email: info@balance.org.nz
Website: www.balance.org.nz

Batten Disease Support Group C/- Lysosomal Diseases New Zealand
Postal address: 167 Hollister Lane, Ohauiti, Tauranga 3112
Phone: 07 544 8868
Email: lysosomal.info@nzord.org.nz
Website: www.ldnz.org.nz

Beckwith-Wiedemann Children's Assn of NZ (Inc)
Postal address: P.O. Box 43-014, Darfield 7541
Phone: 021 922213
Email: bwcanz@bwcanz.org
Website: www.bwcanz.org

Behcets Disease Support Group
Postal address: PO Box 117, Kaikohe
Phone: 09 401 0429
Email: behcets.info@nzord.org.nz
Website: www.behcets.org.nz

Biliary Atresia Support Group
Postal address: 53 Tiverton Rd, Avondale, Auckland
Phone: 09 820 4187
Email: biliaryatresia.info@nzord.org.nz

Bowel Group for Kids - support for children with Hirschprung's disease or imperforate anus
Postal address: 66 Alicia Road, Somerville, Manukau 2014
Phone: 0274 435 457
Email: nz@bgk.org.au
Website: www.bgk.org.au

Brain Injury Association of New Zealand (Auckland) - has contacts for other areas
Postal address: PO Box 99-765, Auckland 1149
Email: information@brain-injury.org.nz
Website: www.brain-injury.org.nz

Breast Cancer Aotearoa Coalition
Postal address: PO Box 90224, Victoria Street West, Auckland 1142
Email: BCAC@breastcancer.org.nz
Website: www.breastcancer.org.nz

Breast Cancer Support
Postal address: : PO Box 10150, Dominion Road, Auckland 1446
Freephone: 0800 273 222
Email: support@breastcancersupport.co.nz
Website: www.breastcancersupport.co.nz

Brittle Bone Association of New Zealand
Postal address: 16 Rimu Rd, Mangere Bridge, Auckland
Phone: 09 634 3684
Email: brittlebone.info@nzord.org.nz

Brown Vialetto Van Laere Support Group
Email: BVVL.info@nzord.org.nz
Website: www.bvvl.co.uk

Burn Support Group Charitable Trust, Inc - with contacts for all New Zealand
Postal address: PO Box 97164, Manukau City, Auckland 2241
Phone: 09 270 0640
Email: info@burns.org.nz
Website: www.burns.org.nz

Cancer Society of New Zealand
Postal address: PO Box 12700, Wellington 6144
Phone: 04 494 7270
Freephone: 0800 CANCER (226 237)
Email: admin@cancer.org.nz
Website: www.cancernz.org.nz

Cancer Voices New Zealand
Postal address: PO Box 312, Wellington
Freephone: 0800 655 355
Email: info@cancervoices.org.nz
Website: www.cancervoices.org.nz

Canteen - Supporting young people living with cancer.
Postal address: PO Box 56 072, Dominion Rd, Auckland 1446
Phone: (09) 303 4444
Freephone: 0800 CANTEEN (226 8336)
Email: canteen.info@nzord.org.nz
Website: www.canteen.org.nz

Cardiac Inherited Diseases Group
Postal address: Inherited Cardiac Disease Coordinator, Paediatric and Congenital Cardiac Services, Starship Hospital Park Road, Auckland
Phone: 09 3074949 09 3074949 ext 23634
Email: CIDGadmin@adhb.govt.nz
Website: www.cidg.org

Carers New Zealand - Information and advocacy for family/whanau carers
Postal address: PO Box 133, Mangonui, Far North 0442
Phone: 09 406 0412
Freephone: (0800) 777 797
Email: info@carers.net.nz
Website: www.carers.net.nz

CCS Disability Action - Support, advocacy and services for people with physical disabilities
Postal address: PO Box 6349, Marion Square, Wellington 6141
Phone: 04 384 5677
Freephone: 0800 227 200
Email: info@ccsdisabilityaction.org.nz
Website: www.ccsdisabilityaction.org.nz/

Cerebral Palsy Society
Postal address: PO Box 24 759, Royal Oak, Auckland 1345
Freephone: 0800 503 603
Email: cpsociety@cpsociety.org.nz
Website: www.cpsoc.org.nz

CHARGE Syndrome Association
Postal address: 16 Bideford St, Brooklands, New Plymouth 4310
Phone: 06 757 9005
Email: contact@chargesyndrome.org.nz
Website: www.chargesyndrome.org.nz

Child Cancer Foundation
Postal address: PO Box 152, Shortland Street, Auckland 1140
Phone: 09 366 1270
Freephone: 0800 4 CHILD (0800 4 24453)
Email: info@childcancer.org.nz
Website: www.childcancer.org.nz

Chromosome18 Registry & Research Society (Australasia)
Postal address: Whare Ridge, 225 Whare Range Road, RD2 Gore 9772
Phone: 03 208 3161
Email: chromosome18.info@nzord.org.nz
Website: www.chromosome18.org

Cleft New Zealand
Postal address: PO Box 13 385, Onehunga, Auckland
Freephone: 0800 4 CLEFT (0800 425 338)
Email: info@cleft.org.nz
Website: www.faceit.org.nz

Cloud 9 Children's Foundation - Support for Asperger's Syndrome
Postal address: PO Box 51 176, Tawa 5249
Phone: 04 232 4795
Email: admin@cloud9foundation.co.nz
Website: www.withyoueverystepoftheway.com

Coeliac New Zealand (Inc.)
Postal address: PO Box 35724, Brown's Bay, North Shore City 0753, Auckland
Phone: 09 820 5157
Email: admin@coeliac.org.nz
Website: www.coeliac.org.nz

Congenital Adrenal Hyperplasia New Zealand
Postal address: PO Box 66, Waihi, Hauraki 3641, New Zealand
Freephone: 0800 224 698 (0800 CAH NZT)
Email: info.CAHNZ@gmail.com
Website: www.cah.org.nz

Congenital Cytomegalovirus Support Group
Postal address: 164 Neudorf Road, Upper Moutere RD2, Nelson
Phone: 03 543 2621
Email: cc.info@nzord.org.nz

Congenital Dyserythropoietic Anemia Support Group
Postal address: 257 Dowse Drive, Maungaraki, Lower Hutt 5010
Phone: 021 048 2790
Email: cda.info@nzord.org.nz

Continence Association of New Zealand
Postal address: PO Box 270, Drury, Auckland 2247
Phone: 09 238 3172
Freephone: 0800 650 659
Email: info@continence.org.nz
Website: www.continence.org.nz

Cornelia de Lange Syndrome Support Group
Postal address: 11 Winsomere Cres, Westmere, Auckland
Phone: 09 378 0720
Email: corneliadelange.info@nzord.org.nz
Website: www.cdlsaus.org

Cot Death Association
Postal address: PO Box 90 907, Auckland 1142
Phone: 09 355 1488
Email: nzcda@childhealth.org.nz
Website: www.curekids.org.nz

Cowden Syndrome & PTEN Mutations Support Group
Postal address: 146a Brookside Tce, Bryndwr, Christchurch
Phone: 021 063 5599
Email: cowden.info@nzord.org.nz

Cri du Chat Support Group of New Zealand
Postal address: PO Box 637, Whangarei
Phone: 09 436 1113
Email: criduchat.info@nzord.org.nz

Crohn's and Colitis New Zealand
Postal address: PO Box 22280, Khandallah, Wellington 6441
Email: info@crohnsandcolitis.org.nz
Website: www.crohnsandcolitis.org.nz

CRPS Support Group
Email: crps.info@nzord.org.nz
Website: www.kiwicrps.co.nz

Cure Kids - (previously Child Health Research Foundation)
Postal address: PO Box 90 907, Auckland 1142
Phone: 09 370 0222
Email: admin@curekids.org.nz
Website: www.curekids.org.nz

Cystic Fibrosis Association of New Zealand
Postal address: PO Box 8241, Riccarton, Christchurch
Phone: 03 3418 024
Email: info@cfnz.org.nz
Website: www.cfnz.org.nz

Deaf Aotearoa New Zealand
Postal address: PO Box 15 770, New Lynn, Auckland 0640
Phone: 09 828 3282
Email: national@deaf.co.nz
Website: www.deaf.co.nz

Deafblind New Zealand
Postal address: 54 Stewart Drive, Newlands, Wellington
Phone: 04 477 2114

DEBRA New Zealand - Support and research for Dystrophic Epidermolysis Bullosa
Postal address: P.O. Box 7316, Newtown, Wellington 6242
Phone: 04 389 7316
Email: debranewzealand@gmail.com
Website: www.debra.org.nz

Diabetes New Zealand
Postal address: PO Box 12 441, Thorndon, Wellington
Phone: 04 499 7145
Freephone: Membership Phone toll-free: 0800 369 636; For educational resources and supplies: Phone toll-free: 0800 DIABETES (0800 342 238)
Email: admin@diabetes.org.nz
Website: www.diabetes.org.nz

Diabetes Youth New Zealand
Postal address: C/- P O Box 67-041, Mt Eden, Auckland
Phone: 09 623 2508
Email: contact@diabetesyouth.org.nz
Website: www.diabetesyouth.org.nz

Doors Syndrome Support Group
Postal address: 224 New Windsor Rd, New Windsor, Auckland 0600
Phone: 09 626 4115
Email: doors.info@nzord.org.nz

Down Syndrome Association
Postal address: PO Box 4142, Auckland
Phone: 0800 693 724
Freephone: 0800 NZDSAI; 0800 693 724 press 3 for your closest group
Email: national.coordinator@nzdsa.org.nz
Website: www.nzdsa.org.nz

DPA (NZ) Inc - Disabled Persons Assembly
Postal address: PO 27 524, Wellington 6035
Phone/TTY: 04 801 9100
Email: gen@dpa.org.nz
Website: www.dpa.org.nz

Dyslexia Foundation of New Zealand
Postal address: P.O. Box: 16141, Hornby, Christchurch
Email: info@dfnz.org.nz
Website: www.dyslexiafoundation.org.nz

Dyspraxia Support Group of New Zealand
Postal address: PO Box 20 292, Bishopdale, Christchurch
Phone: 03 358 3249
Email: dyspraxia.centre@xtra.co.nz
Website: www.dyspraxia.org.nz

Eating Disorder Services (Wellington) - has contact details for other regions
Postal address: Hutt Valley District Health Board, Private Bag 31 907, High Street, Lower Hutt
Phone: 04 461 6528
Email: creds@huttvalleydhb.org.nz,
Website: www.eatingdisorders.org.nz

Ectodermal Dysplasia Support Group
Postal address: 9B Paynters Ave, Strandon, New Plymouth, 4312
Email: ectodermaldysplasia.info@nzord.org.nz

Ehlers-Danlos Foundation of New Zealand
Postal address: 368 Butler Road, RD 3, Waipawa 4273, Hawkes Bay
Phone: 06 856 5577
Email: ehlersdanlos.info@nzord.org.nz
Website: www.edfnz.org.nz

Enable New Zealand - Information service for people with disabilities
Postal address: PO Box 4547, Palmerston North 4442
Phone: 06 353 5800
Freephone: 0800 17 1981
Email: info@enable.co.nz
Website: www.weka.net.nz

Endometriosis Foundation of New Zealand
Postal address: PO Box 1673, Christchurch 8140
Freephone: 0800 733277
Email: Info@endo.org.nz
Website: www.nzendo.co.nz

Epilepsy New Zealand
Postal address: P.O. Box 683, Hamilton 3240
Phone: 07 834 3556
Freephone: 0800 20 21 22.
Email: national@epilepsy.org.nz
Website: www.epilepsy.org.nz

Essential Tremor Support Group
Postal address: PO Box 100761, North Shore, Auckland 0745
Phone: 0508 873 667
Email: nzetsg@gmail.com
Website: www.essentialtremor.org.nz

Fabry Disease Support Group - c/- Lysosomal Diseases New Zealand
Postal address: 16 Woodleigh Place, Ohauiti, Tauranga
Phone: 07 544 8868
Email: lysosomal.info@nzord.org.nz
Website: www.ldnz.org.nz

Family Planning Association New Zealand
Postal address: PO Box 11 515, Wellington 6142
Phone: 04 384 4349
Freephone: 0800 4636 5463
Email: national@familyplanning.org.nz
Website: www.familyplanning.org.nz

Federation of New Zealand Ostomy Societies
Postal address: PO Box 119, Rolleston 7643
Phone: 03 347 2304
Email: secretary@ostomy.org.nz
Website: www.ostomy.org.nz

Fertility New Zealand
Postal address: P.O. Box 28262 Remuera, Auckland 1541
Freephone: 0800 333 306
Email: support@fertilitynz.org.nz
Website: www.fertilitynz.org.nz

Fetal Alcohol Network New Zealand
Postal address: PO Box 99 407, Newmarket, Auckland
Phone: 09 520 7037
Email: fannz@ahw.co.nz
Website: www.fan.org.nz

FHL Support Group - support for Familial Haemophagocytic Lymphohistiocytosis
Postal address: 56 Titi Road, Mauku RD 3, Pukekohe 2678
Phone: 09 236 4182
Email: fhl.info@nzord.org.nz

Floating Harbor Syndrome
Email: floatingharbor.info@nzord.org.nz

Foundation for Nager and Miller Syndromes
Postal address: 11B Acacia Place, Bell Block, New Plymouth
Phone: 06 755 1749
Email: nagermiller.info@nzord.org.nz
Website: www.nzord.org.nz/nager_and_miller_syndromes

Fragile X New Zealand Trust
Postal address: 196 Taita Drive, Avalon 5010, Lower Hutt
Phone: 04 938 0552
Freephone: 0508 938 0552
Email: info@fragilex.org.nz
Website: www.fragilex.org.nz

FSMA NZ - Families of Spinal Muscular Atrophy NZ
Postal address: PO Box 4152, Christchurch
Phone: 021 609 870
Email: fsma.info@nzord.org.nz
Website: www.smanz.org

Gastric Reflux Support Network NZ - for Parents of Infants and Children Charitable Trust
Postal address: PO Box 16596, Hornby, Christchurch 8441
Phone: 022 5855 935
Freephone: 0800 380 517
Email: gastricreflux.info@nzord.org.nz
Website: www.cryingoverspiltmilk.co.nz

Gaucher Association of New Zealand – c/- Lysosomal Diseases New Zealand
Postal address: 167 Hollister Lane, Ohauiti, Tauranga 3112
Phone: 07 544 8868
Email: gaucher.info@nzord.org.nz
Website: www.ldnz.org.nz

Give Life New Zealand - information about organ donation
Postal address: 241 Lincoln Road, Addington, Christchurch 8024
Phone: 03 383 8745
Email: info@givelife.org.nz
Website: www.givelife.org.nz

Glaucoma New Zealand
Postal address: Department of Ophthalmology, University of Auckland, Private Bag 92019, Auckland 1142
Phone: 09 373 8779
Freephone: 0800 GLAUCOMA; 0800 452 826
Email: admin@glaucoma.org.nz
Website: www.glaucoma.org.nz

Grandparents Raising Grandchildren Trust
Postal address: PO Box 34-892 Birkenhead 0746 Auckland
Phone: 0800 472 637
Email: office@grg.org.nz
Website: www.grg.org.nz

Granulosa Cell Tumour Foundation New Zealand
Postal address: 91A Cranford Street, St. Albans, Christchurch, New Zealand 8014
Email: admin@gctf.org.nz
Website: www.gctf.org.nz

GROW – A 12 step programme for mental wellness
Postal address: PO Box 41 051, St Lukes, Auckland
Phone: 09 846 6869
Email: auckland@grow.org.nz

Guillain Barre Syndrome Support Group
Postal address: 27 Grenville St, New Plymouth 4310
Phone: 06 751 1014
Email: guillainbarre.info@nzord.org.nz
Website: www.gbsnz.org.nz

HAE Australasia Hereditary Angioedema Support Group
Phone: 09 473 8054
Email: hae.info@nzord.org.nz
Website: www.haeaustralasia.org.au

Haemochromatosis Support - C/- Leukaemia & Blood Cancer New Zealand (LBC)
Postal address: PO Box 99-182, Newmarket, Auckland
Freephone: 0800 15 10 15
Email: iron@leukaemia.org.nz
Website: www.leukaemia.org.nz

Haemophilia Foundation of New Zealand
Postal address: PO Box 7647, Sydenham, Christchurch, 8240
Phone: 03 371 7477
Email: info@haemophilia.org.nz
Website: www.haemophilia.org.nz

Head Injury Network for Kiwis - THINK!
Postal address: PO Box 1168, Hamilton 3240
Phone: 07 839 1191
Email: admin@THINKNZ.org.nz
Website: www.thinknz.org.nz

Hearing Association of New Zealand
Postal address: 436 Hokio Beach Rd, Levin 5571
Phone: 06-367 9069
Freephone: 0800-23 34 45
Email: office@hearing.org.nz
Website: www.hearing.org.nz

Heart Foundation
Postal address: National Office: 9 Kalmia Street, Ellerslie, Auckland 1051
Phone: 09 571 9191
Email: Info@nhf.org.nz
Website: www.heartfoundation.org.nz

Hepatitis C Resource Centre
Postal address: PO Box 10-354, Christchurch 8145
Freephone: 0800 224 372
Email: hcv@xtra.co.nz
Website: www.hepcnz.org

Hepatitis Foundation
Postal address: PO Box 647, Whakatane
Phone: 07 307 1259
Freephone: 0800 332 010
Email: hepteam@hepfoundation.org.nz
Website: www.hepfoundation.org.nz

Herpes Foundation
Postal address: PO Box 2437, Auckland
Phone: 09 589 3845
Freephone: 0508 11 12 13
Email: info@herpes.org.nz
Website: www.herpes.org.nz

Hidradenitis Suppurativa Aus/NZ Support Group
Postal address: PO Box 1008, Caboolture, Qld, Australia
Email: hs.info@nzord.org.nz
Website: au.groups.yahoo.com/group/hsausnz

Hospice New Zealand
Postal address: PO Box 6660, Wellington
Phone: 04 381 0266
Email: admin@hospice.org.nz
Website: www.hospice.org.nz

HPV Project - Support and education about human papillomavirus
Postal address: PO Box 2437, Auckland
Phone: 09 589 3845
Freephone: 0508 11 12 13
Email: info@hpv.org.nz
Website: www.hpv.org.nz

Huntington's Disease Association (Auckland) - has contacts for other regions
Postal address: PO Box 16 238, Sandringham, Auckland 1351
Phone: 09 815 9703
Freephone: 0800 432 825
Email: huntingtons.info@nzord.org.nz
Website: www.huntingtons.org.nz

Hypothalamic Hamartoma Support Group
Phone: 04 473 4615
Email: hh.info@nzord.org.nz

IHC New Zealand - advocacy and support for intellectual disability
Postal address: PO Box 4155, Wellington 6140
Phone: 04 472 2247
Freephone: 0800 442 442
Email: librarian@ihc.org.nz
Website: www.ihc.org.nz

Immune Deficiencies Foundation of New Zealand / Kids Foundation
Postal address: PO Box 75 076, Manurewa, Manukau 2243
Phone: 09 523 5550
Freephone: 0508 300 600
Email: info@idfnz.org.nz
Website: www.idfnz.org.nz

Itchy Kids New Zealand - support for families living with eczema
Phone: 04 386 1155
Email: itchy@itchykids.org.nz
Website: www.itchykids.org.nz

JDMS Friends - support for Juvenile Dermatomyositis
Email: dermatomyositis.info@nzord.org.nz

Kabuki Syndrome Support Group
Postal address: 315 Seaview Road, Stoke, Nelson
Phone: 03 547 2310
Email: kabuki.info@nzord.org.nz
Online Forum: kabukisyndromenz.proboards.com/index.cgi

KEEA – Kiwi Enuresis and Encopresis Association - support for bedwetting and soiling problems
Postal address: PO Box 270, Drury 2247
Phone: 09 238 3172
Freephone: 0800 650 659
Email: continence.info@nzord.org.nz
Website: www.continence.org.nz

Kidney Health New Zealand
Postal address: 230 Antigua St, Christchurch 8011
Phone: 03 353 1242
Freephone: 0800 543 639
Email: info@kidneys.co.nz
Website: www.kidneys.co.nz

Kidney Kids of New Zealand
Postal address: PO Box 13 732, Onehunga, Auckland 1643
Phone: 09 574 2382
Freephone: 0800 215 437
Email: admin@kidneykids.org.nz
Website: www.kidneykids.org.nz

Klippel Trenaunay Support Group
Postal address: 599 Curraghs Road, West Melton, RD6, Christchurch
Phone: 03 344 1090
Email: KT.info@nzord.org.nz

La Leche League New Zealand - breastfeeding information and support
Postal address: PO Box 50 780, Porirua 5240
Phone: 04 471 0690
Email: admin@lalecheleague.org.nz
Website: www.lalecheleague.org.nz

LAM Charitable Trust - support group for Lymphangeoleiomyomatosis disease
Postal address: 8 Paget St, Freemans Bay, Auckland
Phone: 09 376 4936
Email: director@lam.org.nz
Website: www.lam.org.nz

Leukaemia and Blood Foundation
Postal address: PO Box 99 182, Newmarket, Auckland
Phone: 09 638 3556
Freephone: 0800 15 10 15
Email: lbf@leukaemia.org.nz
Website: www.leukaemia.org.nz

Leukodystrophy Support Group
Postal address: 18 Thames St, Mosgiel
Phone: 03 489 1209
Email: leukodystrophy.info@nzord.org.nz

Lichen Sclerosis Support Group
Email: ls.info@nzord.org.nz

Little Limbs Support Group
Postal address: 30 Ennismore Rd, Mt Albert, Auckland
Phone: 09 828 1108
Email: littlelimbs.info@nzord.org.nz

Little People of New Zealand
Phone: 07 576 4461
Email: littlepeople.info@nzord.org.nz
Website: www.littlepeople.org.nz

Lupus Support Group
Postal address: P.O.Box 249, Silverdale, Auckland 0944
Phone: 021 933 109
Freephone: 0800 324 634
Email: lupusnz@xtra.co.nz
Website: www.lupus.org.nz

Lymphoedema Support Network (Auckland) - has contacts for other areas
Postal address: 4 Acorn St, Royal Oak, Auckland 1023
Phone: 09 625 6463
Email: lymphoedema.info@nzord.org.nz
Website: www.lymphoedema.org.nz

Lysosomal Diseases New Zealand
Postal address: 167 Hollister Lane, Ohauiti, Tauranga 3112
Phone: 07 544 8868
Email: lysosomal.info@nzord.org.nz
Website: www.ldnz.org.nz

Macular Degeneration New Zealand
Postal address: PO Box 137070, Parnell, Auckland
Phone: 0800 622 852
Email: info@mdnz.org.nz
Website: www.mdnz.org.nz

MAGIC Foundation New Zealand - support for children with growth issues and their families
Postal address: 75 Beauchamp St, Karori, Wellington
Phone: 04 476 9896
Email: magic.info@nzord.org.nz
Website: www.magicnz.org.nz

Mal de Debarquement Support Group
Postal address: 1/472 Tremaine Avenue, Palmerston North 4410
Phone: 06 356 1370
Email: mdd.info@nzord.org.nz

Mastocytosis Network of NZ - support for Mastocytosis and disorders of mast-cell activation
Postal address: C/- N Gould, R.D. 2 Kaiapoi 7692
Phone: 03 327 8690
Email: mastocytosis.info@nzord.org.nz
Website: www.mastokids.org

Meniere's Support Group
Postal address: PO Box 19 038, Courtenay Place, Wellington
Phone: 04 384 7017
Email: menieres.info@nzord.org.nz

Meningitis Foundation of New Zealand
Postal address: P O Box 10104, Dominion Rd, Auckland 1446
Phone: 021 977 688
Email: info@meningitis.org.nz
Website: www.meningitis.org.nz

Mental Health Foundation - information resources and promotion of mental health
Postal address: PO Box 10051, Dominion Road, Auckland 1446
Phone: 09 300 7030
Email: resource@mentalhealth.org.nz
Website: www.mentalhealth.org.nz

Migraine Sufferers' Support Group
Postal address: PO Box 40 545, Auckland
Phone: 09 446 6229

Miscarriage Support Group (Auckland) - has contact details for other regions
Postal address: PO Box 14 7011, Ponsonby, Auckland
Phone: 09 378 4060
Email: support@miscarriagesupport.org.nz
Website: www.miscarriagesupport.org.nz

Moebius and Facial Paralysis Support Group of Australasia
Postal address: 1006A Maraekakaho Rd, Hastings
Phone: 027 817 1767
Email: moebius.info@nzord.org.nz

Motor Neurone Disease Association
Postal address: PO Box 24 036, Royal Oak, Auckland 1345
Phone: 09 624 2148
Email: admin@mnda.org.nz
Website: www.mnda.org.nz

Multiple Endocrine Neoplasia Support Group
Postal address: P O Box 87 319, Meadowbank, Auckland 1742
Phone: 021 354 342
Email: info@amend.org.nz
Website: www.amend.org.nz

Multiple Sclerosis Society of New Zealand
Postal address: PO Box 32124, Linwood, Christchurch 8147
Phone: 04 499 4699
Freephone: 0800 675 463
Email: info@msnz.org.nz
Website: www.msnz.org.nz

Muscular Dystrophy Association of New Zealand
Postal address: PO Box 12 063, Penrose, Auckland 1642
Phone: 09 815 0247
Freephone: 0800 800 337
Email: info@mda.org.nz
Website: www.mda.org.nz

Myasthenic Gravis Support Group
Postal address: 18 Paterson Street, Pahiatua 4910
Phone: 09 815 0247
Email: mg.info@nzord.org.nz
Website: www.mda.org.nz

Myelodysplastic Syndrome Support Group
Postal address: c/- Leukaemia and Blood Foundation, PO Box 99 182, Newmarket, Auckland
Phone: 09 638 3556
Freephone: 0800 15 10 15
Email: lbf@leukaemia.org.nz
Website: www.leukaemia.org.nz

Myeloma Matters
Postal address: 17 Richard St, Titahi Bay
Phone: 04 236 7564
Email: info@mywell.org.nz
Website: www.myelomamatters.org.nz

Narcolepsy Support Group of New Zealand
Postal address: 58A Pipiroa Road, Ngatea
Phone: 07 867 7891
Email: narcolepsy.info@nzord.org.nz
Website: www.narcolepsy.org.nz

National Collective of Rape Crisis
Postal address: PO Box 5424, Dunedin 9058
Freephone: 0800 552 813
Email: rcaotearoa@gmail.com
Website: www.rapecrisisnz.org.nz

National Foundation for the Deaf
Postal address: PO Box 37 729, Parnell, Auckland 1151
Phone/TTY: 09 307 2922
Freephone: 0800 867 446
Email: enquiries@nfd.org.nz
Website: www.nfd.org.nz

Natural Fertility New Zealand
Postal address: P.O. Box 10 617, The Terrace, Wellington 6143
Phone: 04 472 6436
Freephone: 0800 178 637
Email: info@naturalfertility.co.nz
Website: www.naturalfertility.co.nz

Neonatal Trust
Postal address: PO Box 9366, Marion Square, Wellington 6141
Phone: 027 221 0730
Email: ceo@neonataltrust.co.nz
Website: www.neonataltrust.co.nz

Neurofibromatosis Association of New Zealand
Postal address: 23 Waimahanga Rd, Onerahi, Whangarei 0101
Phone: 09 436 5211
Email: neurofibromatosis.info@nzord.org.nz
Website: www.nfnz.org.nz

Neurological Foundation
Postal address: PO Box 11 0022, Auckland Hospital 1148, Auckland
Phone: 09 309 7749
Freephone: 0508 272 467
Email: admin@neurological.org.nz
Website: www.neurological.org.nz

New Zealand Breast Cancer Foundation
Postal address: PO Box 99 650, Newmarket, Auckland
Phone: 09 304 0766
Freephone: 0800 902 732
Email: info@nzbcf.org.nz
Website: www.nzbcf.org.nz

New Zealand Drug Foundation
Postal address: PO Box 3082, Wellington 6140
Phone: 04 801 6303
Email: admin@drugfoundation.org.nz
Website: www.drugfoundation.org.nz, www.drughelp.org.nz, www.methhelp.org.nz

New Zealand Dystonia Patient Network
Postal address: PO Box 305 375, Triton Plaza, North Shore 0757
Email: info@dystonia.org.nz
Website: www.dystonia.org.nz

New Zealand Early Menopause Support Group
Postal address: 3 Luxor Place, Massey, Auckland
Phone: 09 833 3908
Email: nzem.info@nzord.org.nz
Website: www.earlymenopause.org.nz

New Zealand Federation for Deaf Children
Postal address: PO Box 18 868, New Brighton, Christchurch, 8641
Freephone: 0800 332 324
Email: deafchildren@xtra.co.nz
Website: www.deafchildren.org.nz

New Zealand Gynaecological Cancer Foundation
Postal address: PO Box 37 020, Parnell, Auckland 1151
Email: info@nzgcf.org.nz
Website: www.nzgcf.org.nz

New Zealand Liver Transplant Recipients Group
Postal address: C/- Liver Transplant Unit, Auckland Hospital, Private Bag 92 024, Auckland
Phone: 09 307 4949 x 6436
Email: aklivert@adhb.govt.nz
Website: www.livers.org.nz

New Zealand Painful Bladder Support Group
Postal address: PO Box 33 264, Christchurch
Phone: 03 347 9007
Email: weedot@xtra.co.nz

New Zealand Pulmonary Arterial Hypertension Group (NZPAH)
Phone: 09 236 8366
Email: info@nzpah.org.nz
Website: www.nzpah.org.nz

New Zealand Spinal Trust
Postal address: Private Bag 4708, Christchurch 8140
Phone: 03 383 6881
Email: info@nzspinaltrust.org.nz
Website: www.nzspinaltrust.org.nz

New Zealand Thyroid Disease Support Group
Postal address: 2/23 Balmain Road, Birkenhead, North Shore, Auckland
Phone: 09 480 2680
Email: thyroid.info@nzord.org.nz
Website: www.thyroidsupport.org.nz

New Zealand Tinnitus and Hyperacusis Support Network
Postal address: C/- Audiology, School of Population Health, University of Auckland, Private Bag 92 019, Auckland
Phone: 09 923 6316
Email: tinnitus@auckland.ac.nz
Website: www.tinnitus.org.nz

New Zealand VIEW - Vision Impaired Empowering Women support group
Postal address: PO Box 1395, Rotorua 3040
Phone: 07 348 2765
Email: nzview.info@nzord.org.nz

Ngati Kaapoo - Support group for blind Maori
Postal address: 510 Market Street South, Hastings
Phone: 06 878 9440
Freephone: 0800 770 990
Email: info@kapomaori.com
Website: www.kapomaori.com

Occulodentodigital Dysplasia Support Group
Postal address: 5 Taylor Street, Brighton, Dunedin
Phone: 03 481 1578
Email: od.info@nzord.org.nz

Orthostatic Tremor Support Group
Postal address: 160B Scott Street, Redwoodtown, Blenheim 7201
Phone: 03 5789821
Email: OT.info@nzord.org.nz

Osteoporosis New Zealand
Postal address: PO Box 688, Wellington
Phone: 04 499 4862
Email: info@bones.org.nz
Website: www.bones.org.nz

Overeaters Anonymous
Email: info@oaregion10.org
Website: www.oaregion10.org

Oxalosis & Hyperoxaluria Foundation - C/- Kidney Kids of New Zealand
Postal address: PO Box 13 732, Onehunga, Auckland 1643
Freephone: 0800 215 437
Email: admin@kidneykids.org.nz
Website: www.kidneykids.org.nz or www.ohf.org

Pachyonychia Congenita Support Group
Postal address: 6 View Road, Titahi Bay, Porirua
Phone: 04 236 7903
Email: pc.info@nzord.org.nz

Pain Action in New Zealand
Postal address: PO Box 32 074, Christchurch
Phone: 03 366 0716
Email: painz@snap.net.nz
Website: www.painz.org.nz

Parent to Parent New Zealand - support to parents of children with special needs
Postal address: PO Box 234, Waikato Mail Centre 3240
Phone: 07 853 8491
Freephone: 0508 236 236
Email: national@parent2parent.org.nz
Website: www.parent2parent.org.nz

Parenteral Nutrition Down Under - support for parenteral feeding for intestinal failure
Postal address: C/- G Hardy, Massey University, Private Bag 102 904, Auckland 0745
Phone: 09 443 9770
Email: contactpndu@gmail.com
Website: parenteral-nutrition-down-under.webs.com

Parents of Vision Impaired New Zealand
Postal address: PO Box 366 Waikato Mail Centre, Hamilton 3240
Phone: 07 839 4205
Freephone: 0800 312 019
Email: pvi.info@nzord.org.nz
Website: www.pvi.org.nz

Parkinsons New Zealand
Postal address: PO Box 11 067, Manners St, Wellington 6142
Phone: 04 472 2796
Freephone: 0800 473 4636
Email: info@parkinsons.org.nz
Website: www.parkinsons.org.nz

People First - by and for people with intellectual disabilities
Postal address: PO Box 9199, Marion Square, Wellington 6141
Phone: 04 381 3242
Freephone: 0800 206 070
Email: mail@peoplefirst.org.nz
Website: www.peoplefirst.org.nz

Peripheral Neuropathy Support Group
Postal address: 25B Tennyson Ave, Avalon, Lower Hutt
Phone: 021 742222
Email: pneuropathy.info@nzord.org.nz

Perry Syndrome Support Group
Postal address: 149 Royal Park Drive, Parklands, Christchurch 8083
Phone: 03 383 0427
Email: perry.info@nzord.org.nz

Personal Advocacy Trust - support for people with intellectual disability
Postal address: PO Box 30 469, Lower Hutt
Phone: 04 385 9175
Email: advocacy@patrust.org.nz

Perthes Support Group
Phone: 027 474 2128
Email: perthesnz@yahoo.com.au
Website: www.perthesnz.bravehost.com

Phace Syndrome Support Group
Phone: 07 542 0740
Email: phace.info@nzord.org.nz

Phobic Trust of New Zealand
Postal address: PO Box 41 133, St Lukes, Auckland 1346
Phone: 09 846 9776
Freephone: 0800 14 Anxiety or 0800 14 269 4389
Email: clinic@phobic.org.nz
Website: www.phobic.org.nz

PKU New Zealand Charitable Trust
Postal address: c/- PO Box 210, Nelson
Phone: 09 835 4796
Email: pkunztrust@gmail.com

PNH Support Association of New Zealand - support for Paroxysmal Nocturnal Haemoglobinuria
Postal address: C/- 5B/ 15 City Road, Auckland Central, Auckland 1010
Phone: 021 115 3790
Email: dwebby@pnhsanz.org.nz
Website: www.pnhsanz.org.nz

PNP – Post Natal Psychosis Support Group
Postal address: PO Box 38 069, Howick, Auckland
Phone: 09 449 1011
Email: pnp.info@nzord.org.nz
Website: www.pnpsupport.org.nz

Porphyria Support Group
Postal address: 10 Muir Ave, Halswell, Christchurch
Phone: 03 322 8877
Email: porphyria.info@nzord.org.nz
Website: www.porphyria.org.nz

Positive Women - support for women and families living with HIV/AIDS
Postal address: P.O. Box 56076 Dominion Road, Auckland 1446
Phone: 09 623 9183
Freephone: 0800 POZTIV (0800 769 848)
Email: positivewomen@xtra.co.nz
Website: www.positivewomen.co.nz

Post-Polio Support Society of New Zealand Inc
Postal address: P.O. Box 260, Mosgiel 9053
Freephone: 0800 476 546 (0800 4 POLIO)
Email: postpolio.info@nzord.org.nz
Website: www.postpolio.org.nz

Prader-Willi Syndrome Association of New Zealand
Postal address: PO Box 258, Silverdale, Auckland 0944
Freephone: 0800 479 743
Email: ceo@pws.org.nz
Website: www.pws.org.nz

Primary Sclerosing Cholangitis Support Group
Postal address: PO Box 60 175, Titirangi, Auckland 0604
Email: info@psckiwiaction.org
Website: www.psckiwiaction.org

Prostate Cancer Foundation of New Zealand
Postal address: PO Box 11006, Musselburgh, Dunedin 9049
Phone: 03 454 4122
Email: info@prostate.org.nz
Website: www.prostate.org.nz

Pseudotumor Cerebri/Intracranial Hypertension Support Group
Postal address: 54 Beach Valley Rd, Piha, Waitakere
Phone: 021 969 924
Email: pcih.info@nzord.org.nz

Psoriasis Association (Southland) - has contacts for other areas
Postal address: 266 Conyers St, Invercargill, 9812
Phone: 03 216 8662
Email: psoriasis.info@nzord.org.nz
Website: www.psoriasis.org.nz

PSP Support Network of New Zealand - support for Progressive Supranuclear Palsy
Postal address: 25 Gilligan Close, Wanganui
Phone: 06 345 2211
Email: psp.info@nzord.org.nz

Pulmonary Fibrosis Support Group
Postal address: 8 Domigan Street, Brockville, Dunedin 9011
Phone: 03 476 2569
Email: pf.info@nzord.org.nz
Website: www.pulmonaryfibrosis.org.nz

PXE International - support for Pseudoxanthoma Elasticum
Postal address: 10 722 The Terrace, Wellington
Phone: 027 457 8123
Email: pxe.info@nzord.org.nz
Website: www.pxe.org

Rare Fat Disorders Support Group (Pacific Australia) - Support for those living with Dercum's Disease, Lipedema, Madelung's Disease and FML.
Email: rfd.info@nzord.org.nz
Website: www.facebook.com/groups/254369064687807/

Restless Legs Syndrome Support Group
Postal address: 22 Greenhill Rd, Annesbrook, Nelson 7011
Phone: 03 548 6398
Email: restlesslegs.info@nzord.org.nz

Retina New Zealand
Postal address: PO Box 2232, Raumati Beach 5255, Paraparaumu
Phone: 04 299 1801
Freephone: 0800 233 833
Email: retina@retina.org.nz
Website: www.retina.org.nz

Rett New Zealand - support for Rett Syndrome
Postal address: PO Box 28 049, Wellington
Phone: 04 475 9265
Email: rett.info@nzord.org.nz
Website: www.rettsyndrome.org.nz

Royal New Zealand Foundation of the Blind
Postal address: Private Bag 99 941, Newmarket, Auckland 1149
Phone: 09 355 6900
Freephone: 0800 243 333
Email: general@rnzfb.org.nz
Website: www.rnzfb.org.nz

Royal New Zealand Plunket Society - support and information on child and family health
Postal address: PO Box 5474, Wellington 6145
Phone: 04 471 0177
Email: plunket@plunket.org.nz
Website: www.plunket.org.nz

SADSNZ - Sudden Arrhythmic Death Syndrome New Zealand
Postal address: 117 Somerfield Street, Christchurch 8024
Phone: 03 337 9552
Email: SADSNZ.info@nzord.org.nz

SAFDA - Support After Foetal Diagnosis of Abnormality
Email: safda.info@nzord.org.nz

Sands New Zealand - Stillbirth and Newborn Death Support
Postal address: P.O. Box 85, Te Aroha 3320
Phone: 04 478 0895
Email: contact@sands.org.nz
Website: www.sands.org.nz

Save Sight Society
Postal address: 8 Upland Road Kelburn, Wellington
Phone: 04 475 9559
Email: info@savesightsociety.org.nz
Website: www.savesightsociety.org.nz

Scleroderma Support Group New Zealand
Postal address: 19 Thatcher Cres, Crofton Downs, Wellington 6035
Phone: 04 479 5548
Email: scleroderma.info@nzord.org.nz
Website: www.scleroderma.org.nz

Selective Mutism Parent Support Group
Email: sm.info@nzord.org.nz

Sjogren's Syndrome New Zealand
Postal address: P.O. Box 314105, Orewa, Auckland 0946
Phone: 09 478 7041
Email: sjogrens.info@nzord.org.nz
Website: www.sjogrensnewzealand.co.nz

Skylight Trust - counselling for grief and loss for children and their families
Postal address: PO Box 7309, Newtown, Wellington South
Phone: 04 939 6767
Freephone: 0800 299 100
Email: info@skylight-trust.org.nz
Website: www.skylight.org.nz

Sleep Apnoea Association of New Zealand
Postal address: PO Box 88, Hamilton 3240
Phone: 07 858 4378
Email: saanz.secretary@gmail.com
Website: www.sleepapnoeanz.org.nz

SOFT - support group for Trisomy 13/18
Postal address: 123 Lethbridge Street, Feilding
Phone: 06 323 2730
Email: soft.info@nzord.org.nz

Spasmodic Dysphonia Support Group
Postal address: PO Box 305 375, Triton Plaza, North Shore 0757
Email: info@dystonia.org.nz
Website: www.dystonia.org.nz

SpeakEasy - support for people who stutter
Website: www.speakeasynz.org.nz

SPELD - support group for Dyslexia and other learning disabilities
Postal address: PO Box 24-042, Royal Oak, Auckland 1345
Phone: 09 624 0839
Email: admin@speld.org.nz
Website: www.speld.org.nz

Spina Bifida Association of New Zealand
Postal address: 181 Beer Rd, RD1, Cambridge 3493
Phone: 07 827 4239
Email: spinabifidanz@zoho.com

SPINZ - Suicide Prevention Information New Zealand
Postal address: PO Box 10 051, Auckland 1446
Phone: 09 300 7035
Email: info@spinz.org.nz
Website: www.spinz.org.nz

St John Caring Caller - support for those who are housebound or live alone
Freephone: 0800 780 780
Email: enquiries@stjohn.org.nz
Website: www.stjohn.org.nz/products/caring_caller.aspx

Stroke Foundation of New Zealand
Postal address: PO Box 12 482, Wellington
Phone: 0800 787 653
Email: strokenz@stroke.org.nz
Website: http://www.stroke.org.nz

Superficial Siderosis Support Group
Postal address: C/- Mr D Hill, 9.O RD, Oamaru 9495
Phone: 03 439 5631
Email: sssurvivors@clear.net.nz
Website: superficialsiderosis.wordpress.com

Supporting Families in Mental Illness
Email: office@supportingfamiliesnz.org.nz
Website: www.supportingfamiliesnz.org.nz

Syringomyelia Support Group
Postal address: 11 Tothill St, New Plymouth
Phone: 06 753 6519
Email: syringomyelia.info@nzord.org.nz
Website: www.syringonz.org.nz

TABS New Zealand - support for post traumatic stress disorder after childbirth
Website: www.tabs.org.nz

Tourette's Association of NZ
Postal address: 33 Brabourne Street, Hillsborough, Chch 8022
Phone: 03 332 0989
Email: info@tourettes.org.nz
Website: www.tourettes.org.nz

Transverse Myelitis Support Group
Postal address: PO Box 95 087, Swanson, Auckland
Phone: 09 810 9807
Email: transversemyelitis.info@nzord.org.nz
Website: www.myelitis.org

Trigeminal Neuralgia Aotearoa (NZ) Support Group
Phone: 022 653 9330
Email: TN.info@nzord.org.nz

Tuberous Sclerosis New Zealand
Postal address: 7 Loasby Pl, Greytown 5712
Phone: 06 304 7998
Email: tuberoussclerosis.info@nzord.org.nz
Website: www.atss.org.au

Turner Syndrome Support Group NZ Inc.
Email: info@turnersyndrome.co.nz
Website: www.turnersyndrome.co.nz

Vasculitis Support New Zealand
Postal address: 70 Royal Park Drive, Parklands, Christchurch
Phone: 03 383 9128
Email: vasculitis.info@nzord.org.nz
Website: www.vasculitis.org.nz

Vaxnet - The New Zealand Vaccination Network
Phone: 021 102 0003
Email: simon@vaxnet.org.nz
Website: www.vaxnet.org.nz

VCFS Support Group - support for Velo Cardio Facial Syndrome
Postal address: c/- Parent and Family Resource Centre, PO Box 13385 , Onehunga, Auckland
Phone: 09 636 0351
Email: vcfs.info@nzord.org.nz
Website: www.vcfs.org.nz

Vein of Galen Malformation Support Group
Email: vgm.info@nzord.org.nz
Website: www.veinofgalen.org.nz

VHL Family Alliance New Zealand - support for Von Hippel–Lindau Disease
Postal address: 17 Kate Sheppard Ave, Torbay, Auckland
Phone: 09 473 0900
Email: vhl.info@nzord.org.nz
Website: www.vhl.org.nz

Wegeners Granulomatosis Support Group
Postal address: 2a Fairclough Road, Beach Haven, North Shore, Auckland
Phone: 027 277 8775
Email: wg.info@nzord.org.nz
Website: www.wegeners.org.nz

Williams Syndrome Association
Postal address: Sonneland, Ngaio Bay, French Pass, RD3, Nelson
Phone: 03 576 5287
Email: williams.info@nzord.org.nz
Website: www.williams-syndrome.org.nz

Womens Health Action Trust
Postal address: PO Box 9947, Newmarket, Auckland 1149
Phone: 09 520 5295
Email: info@womens-health.org.nz
Website: www.womens-health.org.nz

XLH Network - Support for X-linked Hypophosphatemia
Postal address: Flat 1/77 Fairfield Avenue, Addington, Christchurch
Phone: 03 980 0535
Email: xlh.info@nzord.org.nz
Website: http://www.XLHNetwork.org