NZORD survey

Support group directory

Support groups can provide immense support and assistance to people who are impacted by disease.

This support group directory is compiled by NZORD. It incorporates New Zealand health and disability support and information groups for rare and common disorders.

Most listings include only the national office. Local contacts are available through that source.

This page is copyright to NZORD.

@Heart - Supporting heart kids through life
Postal address: PO Box 108 034, Symonds St, Auckland 1150
Phone: 09 377 9950
Freephone: 0800 543 943 (0800 KIDZ HEARTS)
Email: info@heartnz.org.nz
Website: www.heartnz.org.nz

Acoustic Neuroma Association of New Zealand
Postal address: PO Box 222, Taumaranui
Phone: 07 896 7452
Email: info@acousticneuroma.org.nz
Website: www.acousticneuroma.org.nz

Acromegaly Society, The New Zealand
Postal address: PO Box 302, Morrinsville 3304
Phone: 021 293 5506
Email: info@acromegaly.org.nz
Website: www.acromegaly.org.nz

ADD NZ Trust
Postal address: 2 Rhine Street, Island Bay, Wellington 6023
Phone: 04 383 5061
Email: addtrust@xtra.co.nz
Website: www.addnz.org.nz

ADHD Association - Support group for Attention Deficit and Hyperactivity disorders
Postal address: PO Box 9063, Newmarket 1149, Auckland
Phone: 09 625 1754
Email: adhd@clear.net.nz
Website: www.adhd.org.nz

Age Concern New Zealand
Postal address: PO Box 10 688, Wellington 6143
Phone: 04 801 9338
Email: national.office@ageconcern.org.nz
Website: www.ageconcern.org.nz

Aids Foundation
Postal address: PO Box 6663, Wellesley St, Auckland
Phone: 0800 802 437
Email: contact@nzaf.org.nz
Website: www.nzaf.org.nz

Albinism Trust
Postal address: 7 Earl St, Levin 5510
Phone: 06 368 8484
Email: albinism@inspire.net.nz
Website: www.albinism.org.nz/

Alcoholics Anonymous
Postal address: PO Box 6458, Wellington 6141
Phone: 04 472 4250
Freephone: 0800 229 6757
Email: nzgso@xtra.co.nz
Website: www.aa.org.nz

ALD Foundation Trust - support for adrenoleukodystrophy and related X-linked disorders
Postal address: 75 Motutara Road, R.D.1, Muriwai
Phone: 09 411 9221
Email: ald.info@nzord.org.nz
Website: www.ald.org.nz

Allergy New Zealand
Postal address: PO Box 56 117, Dominion Rd, Auckland
Phone: 09 623 3912
Freephone: 0800 340 800
Email: membership@allergy.org.nz
Website: www.allergy.org.nz

Alpha-1 New Zealand - Support group for Alpha-1-Antitrypsin
Postal address: 50A Chatsworth Rd, Silverstream, Upper Hutt
Phone: 04 528 7050
Email: alpha1.info@nzord.org.nz
Website: www.alpha1.org.nz

Alstrom Syndrome International - New Zealand Chapter
Postal address: 6A Parvin Place, Pukekohe, Auckland 2120
Phone: 09 238 9109
Email: alstrom.info@nzord.org.nz
Website: www.alstrom.org

Alzheimers New Zealand
Postal address: P O Box 14768, Kilbirnie, Wellington 6241
Phone: 04 387 8264
Freephone: 0800 004 001
Email: admin@alzheimers.org.nz
Website: www.alzheimers.org.nz

Amputees Federation of NZ
Postal address: 213A Bay View Road, St Clair, Dunedin
Phone: 03 455 6347
Email: info@amputee.co.nz
Website: www.amputee.co.nz

Angelman Network
Postal address: 18 Atamira Close, Churton Park, Wellington 6037
Phone: 09 555 3882 or 021 1382878
Email: angelmannetwork@gmail.com
Website: www.angelmannetwork.com

ANZMES - Associated New Zealand Myalgic Encephalopathy (Chronic Fatigue) Society
Postal address: PO Box 36 307, Northcote, Auckland
Phone: 09 269 6374
Email: info@anzmes.org.nz
Website: www.anzmes.org.nz

APECED Network - Support for Polyautoimmune Syndrome Type 1 (also called APS1)
Postal address: PO Box 17 414, Greenlane, Auckland
Phone: 09 636 8238
Email: apeced.info@nzord.org.nz
Website: www.empower.org.nz

Apert Network - Support group for Apert and Cranio-Facial syndromes
Phone: 09 476 0251
Email: apert@apert.org.nz

Aphasia New Zealand Charitable Trust
Postal address: C/- University of Auckland, Tamaki Campus, Private Bag 92019, Auckland Mail Centre 1142
Freephone: 0508 274 274
Email: info@aphasia.org.nz
Website: www.aphasia.org.nz

Arachnoid Cyst Information Network
Email: arachnoidcyst.info@nzord.org.nz
Website: www.arachnoidcyst.org.nz

Arnold Chiari Malformation Support Group
Postal address: 3 Townend St, Waipara, North Canterbury 7447
Phone: 027 713 3221
Email: acm.info@nzord.org.nz
Website: www.acmsupport.org.nz

Arteriovenous Malformations Support Group
Postal address: 31B Arthur Street, Ellerslie, Auckland
Phone: 021 1867106
Email: AVM.info@nzord.org.nz

Arthritis Foundation of New Zealand
Postal address: PO Box 10 020, The Terrace, Wellington
Phone: 04 472 1427
Freephone: 0800 663 463
Email: arthritis.info@nzord.org.nz
Website: www.arthritis.org.nz

Arthrogryposis Group of New Zealand (TAG-NZ)
Postal address: 57 Helmore St, Wanganui
Phone: 06 343 3394
Email: arthrogryposis.info@nzord.org.nz
Website: www.arthrogryposis.org.nz

Association of Blind Citizens
Postal address: PO Box 7144, Wellington South
Phone: 04 389 0033
Freephone: 0800-ABC-NZ-INC (0800 222 694)
Email: enquiries@abcnz.org.nz
Website: www.abcnz.org.nz

Asthma and Respiratory Foundation
Postal address: PO Box 1459, Wellington
Phone: 04 499 4592
Email: info@asthmafoundation.org.nz
Website: www.asthmanz.co.nz

Asthma New Zealand
Postal address: PO Box 67 066, Mt Eden, Auckland
Phone: 09 623 0236
Email: anz@asthma-nz.org.nz
Website: www.asthma-nz.org.nz

Ataxia Telangiectasia Support Group
Postal address: 15 Clyde Street, Mataura 9712
Phone: 03 203 3252 021 211 7838
Email: AtaxiaTinfo@nzord.org.nz

Autism New Zealand
Postal address: PO Box 6455, Te Aro, Wellington 6141
Phone: 04 803 3501
Freephone: 0800 288 476
Email: info@autismnz.org.nz
Website: www.autismnz.org.nz

AutoImmune New Zealand - Support for New Zealanders with auto immune disorders
Email: info@autoimmune.org.nz
Website: www.autoimmune.org.nz

Balance, New Zealand Bipolar Network - Support for those affected by bipolar disorder (manic depression)
Postal address: PO Box 13 266, Armagh, Christchurch 8141
Phone: 03 366 3631
Email: info@balance.org.nz
Website: www.balance.org.nz

Batten Disease Support Group C/- Lysosomal Diseases New Zealand
Postal address: 167 Hollister Lane, Ohauiti, Tauranga 3112
Phone: 07 544 8868
Email: lysosomal.info@nzord.org.nz
Website: www.ldnz.org.nz

Beckwith-Wiedemann Children's Assn of NZ (Inc)
Postal address: P.O. Box 43-014, Darfield 7541
Phone: 021 922213
Email: bwcanz@bwcanz.org
Website: www.bwcanz.org

Behcets Disease Support Group
Postal address: PO Box 117, Kaikohe
Phone: 09 401 0429
Email: behcets.info@nzord.org.nz
Website: www.behcets.org.nz

Blind Foundation
Postal address: Private Bag 99 941, Newmarket, Auckland 1149
Phone: 09 355 6900
Freephone: 0800 243 333
Email: GeneralEnquiries@blindfoundation.org.nz
Website: http://blindfoundation.org.nz/

Bowel Group for Kids - support for children with Hirschprung's disease or imperforate anus
Postal address: 66 Alicia Road, Somerville, Manukau 2014
Phone: 0274 435 457
Email: nz@bgk.org.au
Website: www.bgk.org.au

Brain Injury Association of New Zealand (Auckland) - has contacts for other areas
Postal address: PO Box 99-765, Auckland 1149
Email: information@brain-injury.org.nz
Website: www.brain-injury.org.nz

Breast Cancer Aotearoa Coalition
Postal address: PO Box 90224, Victoria Street West, Auckland 1142
Email: BCAC@breastcancer.org.nz
Website: www.breastcancer.org.nz

Breast Cancer Support
Postal address: : PO Box 10150, Dominion Road, Auckland 1446
Freephone: 0800 273 222
Email: support@breastcancersupport.co.nz
Website: www.breastcancersupport.co.nz

Brown Vialetto Van Laere Support Group
Email: BVVL.info@nzord.org.nz
Website: www.bvvl.co.uk

Burn Support Group Charitable Trust, Inc - with contacts for all New Zealand
Postal address: PO Box 97164, Manukau City, Auckland 2241
Phone: 09 270 0640
Email: info@burns.org.nz
Website: www.burns.org.nz

Cancer Society of New Zealand
Postal address: PO Box 12700, Wellington 6144
Phone: 04 494 7270
Freephone: 0800 CANCER (226 237)
Email: admin@cancer.org.nz
Website: www.cancernz.org.nz

Canteen - Supporting young people living with cancer.
Postal address: PO Box 56 072, Dominion Rd, Auckland 1446
Phone: (09) 303 4444
Freephone: 0800 CANTEEN (226 8336)
Email: canteen.info@nzord.org.nz
Website: www.canteen.org.nz

Cardiac Inherited Diseases Group
Postal address: Inherited Cardiac Disease Coordinator, Paediatric and Congenital Cardiac Services, Starship Hospital Park Road, Auckland
Phone: 09 3074949 09 3074949 ext 23634
Email: CIDGadmin@adhb.govt.nz
Website: www.cidg.org

Carers New Zealand - Information and advocacy for family/whanau carers
Postal address: PO Box 133, Mangonui, Far North 0442
Phone: 09 406 0412
Freephone: (0800) 777 797
Email: info@carers.net.nz
Website: www.carers.net.nz

CCS Disability Action - Support, advocacy and services for people with physical disabilities
Postal address: P O Box 35-156, Nae Nae, Wellington 5041
Phone: 04 5678910
Freephone: 0800 227 2255
Email: info@ccsdisabilityaction.org.nz
Website: www.ccsdisabilityaction.org.nz/

CDKL5 Support Group
Postal address: 31 Benmore Avenue, Cloverlea, Palmerston North, 4412
Phone: 06 353 8033 021 177 2993
Email: CDKL5info@nzord.org.nz

Cerebral Palsy Society
Postal address: PO Box 24 759, Royal Oak, Auckland 1345
Freephone: 0800 503 603
Email: cpsociety@cpsociety.org.nz
Website: www.cpsoc.org.nz

CHARGE Syndrome Association
Postal address: 47 Wallath Road, Westown, New Plymouth 4310
Phone: 06 753 9008
Email: contact@chargesyndrome.org.nz
Website: www.chargesyndrome.org.nz

Child Cancer Foundation
Postal address: PO Box 152, Shortland Street, Auckland 1140
Phone: 09 366 1270
Freephone: 0800 4 CHILD (0800 4 24453)
Email: info@childcancer.org.nz
Website: www.childcancer.org.nz

Chromosome18 Registry & Research Society (Australasia)
Postal address: Whare Ridge, 225 Whare Range Road, RD2 Gore 9772
Phone: 03 208 3161
Email: chromosome18.info@nzord.org.nz
Website: www.chromosome18.org

Cleft New Zealand
Postal address: PO Box 13 385, Onehunga, Auckland
Freephone: 0800 4 CLEFT (0800 425 338)
Email: info@cleft.org.nz
Website: www.faceit.org.nz

Cloud 9 Children's Foundation - Support for Asperger's Syndrome
Postal address: PO Box 51 176, Tawa 5249
Phone: 04 232 4795
Email: admin@cloud9foundation.co.nz
Website: www.withyoueverystepoftheway.com

Coeliac New Zealand (Inc.)
Postal address: PO Box 35724, Brown's Bay, North Shore City 0753, Auckland
Phone: 09 820 5157
Email: admin@coeliac.org.nz
Website: www.coeliac.org.nz

Congenital Adrenal Hyperplasia New Zealand
Postal address: PO Box 66, Waihi, Hauraki 3641, New Zealand
Freephone: 0800 224 698 (0800 CAH NZT)
Email: info.CAHNZ@gmail.com
Website: www.cah.org.nz

Congenital Cytomegalovirus Support Group
Postal address: C/- MacNeil, 56 Kelling Road, Upper Moutere, RD 2, Nelson 7175
Phone: 03 543 2621
Email: cc.info@nzord.org.nz

Congenital Dyserythropoietic Anemia Support Group
Postal address: 257 Dowse Drive, Maungaraki, Lower Hutt 5010
Phone: 021 048 2790
Email: cda.info@nzord.org.nz

Continence Association of New Zealand
Postal address: PO Box 270, Drury, Auckland 2247
Phone: 09 238 3172
Freephone: 0800 650 659
Email: jan@continence.org.nz
Website: www.continence.org.nz

Cornelia de Lange Syndrome Support Group
Postal address: 11 Winsomere Cres, Westmere, Auckland
Phone: 09 378 0720
Email: corneliadelange.info@nzord.org.nz
Website: www.cdlsaus.org

Cot Death Association
Postal address: PO Box 90 907, Auckland 1142
Phone: 09 355 1488
Email: nzcda@childhealth.org.nz
Website: www.curekids.org.nz

Cowden Syndrome & PTEN Mutations Support Group
Postal address: 146a Brookside Tce, Bryndwr, Christchurch
Phone: 021 063 5599
Email: cowden.info@nzord.org.nz

Cri du Chat Support Group of New Zealand
Postal address: PO Box 637, Whangarei
Phone: 09 436 1113
Email: criduchat.info@nzord.org.nz
Website: www.criduchat.org.nz

Crohn's and Colitis New Zealand
Postal address: PO Box 22280, Khandallah, Wellington 6441
Freephone: 0800 275423
Email: info@crohnsandcolitis.org.nz
Website: www.crohnsandcolitis.org.nz

CRPS Charitable Trust
Postal address: P O Box 28234, Remuera, Auckland 1541
Email: info@kiwicrps.co.nz
Website: www.kiwicrps.co.nz

Cure Kids - (previously Child Health Research Foundation)
Postal address: PO Box 90 907, Auckland 1142
Phone: 09 370 0222
Email: admin@curekids.org.nz
Website: www.curekids.org.nz

Cystic Fibrosis Association of New Zealand
Postal address: PO Box 8241, Riccarton, Christchurch
Phone: 03 3418 024
Email: info@cfnz.org.nz
Website: www.cfnz.org.nz

Deaf Aotearoa New Zealand
Postal address: PO Box 15 770, New Lynn, Auckland 0640
Phone: 09 828 3282
Email: national@deaf.co.nz
Website: www.deaf.co.nz

Deafblind New Zealand
Postal address: 54 Stewart Drive, Newlands, Wellington
Phone: 04 232 2346
Website: www.deafblind.org.nz

DEBRA New Zealand - Support and research for Dystrophic Epidermolysis Bullosa
Postal address: P.O. Box 7316, Newtown, Wellington 6242
Phone: 04 389 7316
Email: debra@debra.org.nz
Website: www.debra.org.nz

Diabetes New Zealand
Postal address: PO Box 12 441, Thorndon, Wellington
Phone: 04 499 7145
Freephone: For general and information pamphlets phone: 0800 DIABETES (0800 342 238)
Email: admin@diabetes.org.nz
Website: www.diabetes.org.nz

Diabetes Youth New Zealand
Postal address: P O Box 56172, Dominion Road, Auckland 1446
Phone: 09 623 2508
Email: contact@diabetesyouth.org.nz
Website: www.diabetesyouth.org.nz
Online Forum: www.facebook.com/diabetesyouthnz

Doors Syndrome Support Group
Postal address: 224 New Windsor Rd, New Windsor, Auckland 0600
Phone: 09 626 4115
Email: doors.info@nzord.org.nz

Down Syndrome Association
Postal address: PO Box 4142, Auckland
Phone: 0800 693 724
Freephone: 0800 NZDSAI; 0800 693 724 press 3 for your closest group
Email: national.coordinator@nzdsa.org.nz
Website: www.nzdsa.org.nz

DPA (NZ) Inc - Disabled Persons Assembly
Postal address: PO 27 524, Wellington 6035
Phone/TTY: 04 801 9100
Email: gen@dpa.org.nz
Website: www.dpa.org.nz

Dyslexia Foundation of New Zealand
Postal address: P.O. Box: 16141, Hornby, Christchurch
Email: info@dfnz.org.nz
Website: www.dyslexiafoundation.org.nz

Dyspraxia Support Group of New Zealand
Postal address: PO Box 20 292, Bishopdale, Christchurch
Phone: 03 358 3249
Email: dyspraxia.centre@xtra.co.nz
Website: www.dyspraxia.org.nz

Eating Disorder Services (Wellington) - has contact details for other regions
Postal address: Hutt Valley District Health Board, Private Bag 31 907, High Street, Lower Hutt
Phone: 04 461 6528
Email: creds@huttvalleydhb.org.nz,
Website: www.eatingdisorders.org.nz

Ectodermal Dysplasia Support Group
Postal address: Unit 1, 7 Mahoe St, Strandon, New Plymouth
Phone: 021 190 1158
Email: ectodermaldysplasia.info@nzord.org.nz

Ehlers-Danlos Foundation of New Zealand
Postal address: 368 Butler Road, RD 3, Waipawa 4273, Hawkes Bay
Phone: 06 856 5577
Email: info@nzedf.org.nz
Website: www.nzedf.org.nz

Enable New Zealand - Information service for people with disabilities
Postal address: PO Box 4547, Palmerston North 4442
Phone: 06 353 5800
Freephone: 0800 17 1981
Email: info@enable.co.nz
Website: www.weka.net.nz

Endometriosis Foundation of New Zealand
Postal address: PO Box 1673, Christchurch 8140
Freephone: 0800 733277
Email: Info@endo.org.nz
Website: www.nzendo.co.nz

Epilepsy New Zealand
Postal address: P O Box 1074, Waikato Mail Centre, Hamilton 3240
Phone: 07 834 3556
Freephone: 0800 EPILEPSY ( 0800 374 53779)
Email: national@epilepsy.org.nz
Website: www.epilepsy.org.nz

Essential Tremor Support Group
Postal address: PO Box 100761, North Shore, Auckland 0745
Phone: 0508 873 667
Email: nzetsg@gmail.com
Website: www.essentialtremor.org.nz

Fabry Disease Support Group - c/- Lysosomal Diseases New Zealand
Postal address: 16 Woodleigh Place, Ohauiti, Tauranga
Phone: 07 544 8868
Email: lysosomal.info@nzord.org.nz
Website: www.ldnz.org.nz

Family Planning Association New Zealand
Postal address: PO Box 11 515, Wellington 6142
Phone: 04 384 4349
Freephone: 0800 4636 5463
Email: national@familyplanning.org.nz
Website: www.familyplanning.org.nz

Federation of New Zealand Ostomy Societies
Postal address: PO Box 119, Rolleston 7643
Phone: 03 347 2304
Email: secretary@ostomy.org.nz
Website: www.ostomy.org.nz

Fertility New Zealand
Postal address: P.O. Box 28262 Remuera, Auckland 1541
Freephone: 0800 333 306
Email: support@fertilitynz.org.nz
Website: www.fertilitynz.org.nz

Fetal Alcohol Network New Zealand
Postal address: PO Box 99 407, Newmarket, Auckland
Phone: 09 520 7037
Email: fannz@ahw.org.nz
Website: www.fan.org.nz

FHL Support Group - support for Familial Haemophagocytic Lymphohistiocytosis
Postal address: 56 Titi Road, Mauku RD 3, Pukekohe 2678
Phone: 09 236 4182
Email: fhl.info@nzord.org.nz

Foetal Anti-Convulsant Syndrome NZ
Postal address: P O Box 82-175,Highland Park,Auckland 2010
Phone: 0211894483
Email: denise@facsnz.com
Website: www.facsnz.com

Foundation for Nager and Miller Syndromes
Postal address: 11B Acacia Place, Bell Block, New Plymouth
Phone: 06 755 1749
Email: nagermiller.info@nzord.org.nz
Website: www.nzord.org.nz/nager_and_miller_syndromes

Fragile X New Zealand Trust
Postal address: 196 Taita Drive, Avalon 5010, Lower Hutt
Phone: 04 938 0552
Freephone: 0508 938 0552
Email: info@fragilex.org.nz
Website: www.fragilex.org.nz

FSMA NZ - Families of Spinal Muscular Atrophy NZ
Postal address: PO Box 4152, Christchurch
Phone: 021 609 870
Email: fsma.info@nzord.org.nz
Website: www.smanz.org

Gastric Reflux Support Network NZ - for Parents of Infants and Children Charitable Trust
Postal address: PO Box 16596, Hornby, Christchurch 8441
Phone: 022 5855 935
Freephone: 0800 380 517
Email: gastricreflux.info@nzord.org.nz
Website: www.cryingoverspiltmilk.co.nz

Gaucher Association of New Zealand – c/- Lysosomal Diseases New Zealand
Postal address: 167 Hollister Lane, Ohauiti, Tauranga 3112
Phone: 07 544 8868
Email: gaucher.info@nzord.org.nz
Website: www.ldnz.org.nz

Give Life New Zealand - information about organ donation
Postal address: 241 Lincoln Road, Addington, Christchurch 8024
Phone: 03 383 8745
Email: info@givelife.org.nz
Website: www.givelife.org.nz

Glaucoma New Zealand
Postal address: Department of Ophthalmology, University of Auckland, Private Bag 92019, Auckland 1142
Phone: 09 373 8779
Freephone: 0800 GLAUCOMA; 0800 452 826
Email: admin@glaucoma.org.nz
Website: www.glaucoma.org.nz

Grandparents Raising Grandchildren Trust
Postal address: PO Box 34-892 Birkenhead 0746 Auckland
Phone: 0800 472 637
Email: office@grg.org.nz
Website: www.grg.org.nz

Granulosa Cell Tumour Foundation New Zealand
Postal address: 91A Cranford Street, St. Albans, Christchurch, New Zealand 8014
Email: admin@gctf.org.nz
Website: www.gctf.org.nz

GROW – A 12 step programme for mental wellness
Postal address: 97 St Lukes Road, St Lukes, Auckland 1025
Phone: Office hours: 1pm-5pm 09 846 6869
Email: auckland@grow.org.nz
Website: www.grow.org.nz

Guillain Barre Syndrome Support Group
Postal address: 27 Grenville St, New Plymouth 4310
Phone: 06 751 1014
Email: guillainbarre.info@nzord.org.nz
Website: www.gbsnz.org.nz

HAE Australasia Hereditary Angioedema Support Group
Phone: 09 473 8054
Email: hae.info@nzord.org.nz
Website: www.haeaustralasia.org.au

Haemochromatosis Support - C/- Leukaemia & Blood Cancer New Zealand (LBC)
Postal address: PO Box 99-182, Newmarket, Auckland
Freephone: 0800 15 10 15
Email: info@leukaemia.org.nz
Website: www.leukaemia.org.nz

Haemophilia Foundation of New Zealand
Postal address: PO Box 7647, Sydenham, Christchurch, 8240
Phone: 03 371 7477
Email: info@haemophilia.org.nz
Website: www.haemophilia.org.nz

Head Injury Network for Kiwis - THINK!
Postal address: 11 Somerset Street, Frankton, Hamilton 3204
Phone: 07 839 1191
Email: admin@THINKNZ.org.nz
Website: www.thinknz.org.nz

Hearing Association of New Zealand
Postal address: P O Box 11563, Ellerslie, Auckland 1142
Phone: 06-367 9069
Freephone: 0800-23 34 45
Email: office@hearing.org.nz
Website: www.hearing.org.nz

Heart Foundation
Postal address: National Office: 9 Kalmia Street, Ellerslie, Auckland 1051
Phone: 09 571 9191
Freephone: 0800 863375
Email: Info@nhf.org.nz
Website: www.heartfoundation.org.nz

Hepatitis C Resource Centre
Postal address: PO Box 10-354, Christchurch 8145
Freephone: 0800 224 372
Email: Christchurch@hepcnz.org
Website: www.hepcnz.org

Hepatitis Foundation
Postal address: PO Box 647, Whakatane
Phone: 07 307 1259
Freephone: 0800 332 010
Email: hepteam@hepfoundation.org.nz
Website: www.hepfoundation.org.nz

Herpes Foundation
Postal address: PO Box 2437, Auckland
Phone: 09 433 6526
Freephone: 0508 11 12 13
Email: info@herpes.org.nz
Website: www.herpes.org.nz

Hidradenitis Suppurativa Aus/NZ Support Group
Postal address: PO Box 1008, Caboolture, Qld, Australia
Email: hs.info@nzord.org.nz
Website: au.groups.yahoo.com/group/hsausnz

Hospice New Zealand
Postal address: PO Box 6660, Wellington
Phone: 04 381 0266
Email: admin@hospice.org.nz
Website: www.hospice.org.nz

HPV Project - Support and education about human papillomavirus
Postal address: PO Box 2437, Auckland
Phone: 09 589 3845
Freephone: 0508 11 12 13
Email: info@hpv.org.nz
Website: www.hpv.org.nz

Huntington's Disease Association (Auckland) - has contacts for other regions
Postal address: PO Box 16 238, Sandringham, Auckland 1351
Phone: 09 815 9703
Freephone: 0800 432 825
Email: huntingtons.info@nzord.org.nz
Website: www.huntingtons.org.nz

IHC New Zealand - advocacy and support for intellectual disability
Postal address: PO Box 4155, Wellington 6140
Phone: 04 472 2247
Freephone: 0800 442 442
Email: librarian@ihc.org.nz
Website: www.ihc.org.nz

Immune Deficiencies Foundation of New Zealand / Kids Foundation
Postal address: PO Box 75 076, Manurewa, Manukau 2243
Phone: 09 523 5550
Freephone: 0508 300 600
Email: info@idfnz.org.nz
Website: www.idfnz.org.nz

ISCT Support Group - support for intramedullary spinal cord tumour
Postal address: 783C Queens Drive, Waikiwi, Invercargill 9810, New Zealand
Phone: 0279038027
Email: ISCT.info@nzord.org.nz

Itchy Kids New Zealand - support for families living with eczema
Email: itchy@itchykids.org.nz
Website: www.itchykids.org.nz

JDMS Friends - support for Juvenile Dermatomyositis
Email: dermatomyositis.info@nzord.org.nz

Kabuki Syndrome Support Group
Postal address: 315 Seaview Road, Stoke, Nelson
Phone: 03 547 2310
Email: kabuki.info@nzord.org.nz

KEEA – Kiwi Enuresis and Encopresis Association - support for bedwetting and soiling problems
Postal address: PO Box 270, Drury 2247
Phone: 09 238 3172
Freephone: 0800 650 659
Email: info@continence.org.nz
Website: www.continence.org.nz

Kidney Health New Zealand
Postal address: 230 Antigua St, Christchurch 8011
Phone: 03 353 1242
Freephone: 0800 543 639
Email: info@kidneys.co.nz
Website: www.kidneys.co.nz

Kidney Kids of New Zealand
Postal address: PO Box 13 732, Onehunga, Auckland 1643
Phone: 09 574 2382
Freephone: 0800 215 437
Email: admin@kidneykids.org.nz
Website: www.kidneykids.org.nz

Klippel Trenaunay Support Group
Postal address: 599 Curraghs Road, West Melton, RD6, Christchurch
Phone: 03 344 1090
Email: KT.info@nzord.org.nz

La Leche League New Zealand - breastfeeding information and support
Postal address: PO Box 50 780, Porirua 5240
Phone: 04 471 0690
Email: admin@lalecheleague.org.nz
Website: www.lalecheleague.org.nz

LAM Charitable Trust - Support group for Lymphangeoleiomyomatosis, commonly known as LAM
Postal address: 8 Paget St, Freemans Bay, Auckland
Phone: 09 376 4936
Email: director@lam.org.nz
Website: www.lam.org.nz

Leukaemia and Blood Foundation
Postal address: PO Box 99 182, Newmarket, Auckland
Phone: 09 638 3556
Freephone: 0800 15 10 15
Email: info@leukaemia.org.nz
Website: www.leukaemia.org.nz

Leukodystrophy Support Group
Postal address: 18 Thames St, Mosgiel
Phone: 03 489 1209
Email: leukodystrophy.info@nzord.org.nz

Lichen Sclerosis Support Group
Email: ls.info@nzord.org.nz

Little Limbs Support Group
Postal address: 30 Ennismore Rd, Mt Albert, Auckland
Phone: 09 828 1108
Email: littlelimbs.info@nzord.org.nz

Little People of New Zealand
Phone: 07 576 4461
Email: lpnz@gmail.com
Website: www.littlepeople.org.nz

LUPUS New Zealand
Phone: 021 933 109
Freephone: 0800 324 634
Email: lupusnz@gmail.com
Website: www.lupus.org.nz

Lymphoedema Support Network (Auckland) - has contacts for other areas
Postal address: 4 Acorn St, Royal Oak, Auckland 1023
Phone: 09 625 6463
Email: lymphoedema.info@nzord.org.nz
Website: www.lymphoedema.org.nz

Lysosomal Diseases New Zealand
Postal address: 167 Hollister Lane, Ohauiti, Tauranga 3112
Phone: 07 544 8868
Email: lysosomal.info@nzord.org.nz
Website: www.ldnz.org.nz

Macular Degeneration New Zealand
Postal address: PO Box 137070, Parnell, Auckland
Phone: 0800 622 852
Email: info@mdnz.org.nz
Website: www.mdnz.org.nz

MAGIC Foundation New Zealand - support for children with growth issues and their families
Postal address: 75 Beauchamp St, Karori, Wellington
Phone: 04 476 9896
Email: magic.info@nzord.org.nz

Mal de Debarquement Support Group
Postal address: 1/472 Tremaine Avenue, Palmerston North 4410
Phone: 06 356 1370
Email: mdd.info@nzord.org.nz

Mastocytosis Network of New Zealand - support for Mastocytosis and disorders of mast-cell activation
Website: www.mastokids.org
Online Forum: www.facebook.com/groups/754339814615863/

Meniere's Support Group
Postal address: PO Box 19 038, Courtenay Place, Wellington
Phone: 04 384 7017
Email: menieres.info@nzord.org.nz

Meningitis Foundation of New Zealand
Postal address: P O Box 10104, Dominion Rd, Auckland 1446
Phone: 021 977 688
Freephone: 0800 IMMUNE (0800 466863)
Email: info@meningitis.org.nz
Website: www.meningitis.org.nz

Mental Health Foundation - information resources and promotion of mental health
Postal address: PO Box 10051, Dominion Road, Auckland 1446
Phone: 09 623 4810
Email: info@mentalhealth.org.nz
Website: www.mentalhealth.org.nz

Migraine Sufferers' Support Group
Postal address: PO Box 40 545, Auckland
Phone: 09 446 6229

Miscarriage Support Group (Auckland) - has contact details for other regions
Postal address: PO Box 14 7011, Ponsonby, Auckland
Phone: 09 378 4060
Email: support@miscarriagesupport.org.nz
Website: www.miscarriagesupport.org.nz

Moebius and Facial Paralysis Support Group of Australasia
Postal address: 1006A Maraekakaho Rd, Hastings
Phone: 027 817 1767
Email: moebius.info@nzord.org.nz

Motor Neurone Disease Association
Postal address: PO Box 24 036, Royal Oak, Auckland 1345
Phone: 09 624 2148
Email: admin@mnda.org.nz
Website: www.mnda.org.nz

Multiple Sclerosis Society of New Zealand
Postal address: PO Box 32124, Linwood, Christchurch 8147
Phone: 04 499 4677
Freephone: 0800 675 463
Email: info@msnz.org.nz
Website: www.msnz.org.nz

Muscular Dystrophy Association of New Zealand
Postal address: PO Box 12 063, Penrose, Auckland 1642
Phone: 09 815 0247
Freephone: 0800 800 337
Email: info@mda.org.nz
Website: www.mda.org.nz

Myasthenic Gravis Support Group
Postal address: 422 Pahiatua-Pongaroa Road, Pahiatua 4982
Phone: 06 376 7560
Email: mg.info@nzord.org.nz
Website: www.mda.org.nz

Myelodysplastic Syndrome Support Group
Postal address: c/- Leukaemia and Blood Foundation, PO Box 99 182, Newmarket, Auckland
Phone: 09 638 3556
Freephone: 0800 15 10 15
Email: lbf@leukaemia.org.nz
Website: www.leukaemia.org.nz

Myeloma Matters
Postal address: 17 Richard St, Titahi Bay
Phone: 04 236 7564

Narcolepsy Support Group of New Zealand
Postal address: 1E/36 James Cook Crescent, Remuera, Auckland 1050
Phone: 021 1474 306
Email: narcolepsy.info@nzord.org.nz
Website: www.narcolepsy.org.nz

National Collective of Rape Crisis
Postal address: PO Box 5424, Dunedin 9058
Freephone: 0800 883300
Email: admin@rapacrisis.org.nz
Website: www.rapecrisisnz.org.nz

National Foundation for the Deaf
Postal address: PO Box 37 729, Parnell, Auckland 1151
Phone/TTY: 09 307 2922
Freephone: 0800 867 446
Email: enquiries@nfd.org.nz
Website: www.nfd.org.nz

Natural Fertility New Zealand
Postal address: P O box 5402, Lambton Quay, Wellington 6145
Phone: 04 472 6436
Freephone: 0800 178 637
Email: admin@naturalfertility.co.nz
Website: www.naturalfertility.co.nz

Neonatal Trust
Postal address: PO Box 9366, Marion Square, Wellington 6141
Phone: 027 2492791
Email: info@neonataltrust.org.nz
Website: www.neonataltrust.co.nz

Neurofibromatosis Association of New Zealand
Postal address: 23 Waimahanga Rd, Onerahi, Whangarei 0101
Phone: 09 436 5211
Email: neurofibromatosis.info@nzord.org.nz
Website: www.nfnz.org.nz

Neurological Foundation
Postal address: PO Box 11 0022, Auckland Hospital 1148, Auckland
Phone: 09 309 7749
Freephone: 0508 272 467
Email: admin@neurological.org.nz
Website: www.neurological.org.nz

New group button

New Zealand Action on Pre-eclampsia
Email: info@nzapec.com
Website: www.nzapec.com

New Zealand Breast Cancer Foundation
Postal address: PO Box 99 650, Newmarket, Auckland
Phone: 09 304 0766
Freephone: 0800 902 732
Email: info@nzbcf.org.nz
Website: www.nzbcf.org.nz

New Zealand Drug Foundation
Postal address: PO Box 3082, Wellington 6140
Phone: 04 801 6303
Email: admin@drugfoundation.org.nz
Website: www.drugfoundation.org.nz, www.drughelp.org.nz, www.methhelp.org.nz

New Zealand Dystonia Patient Network
Postal address: P O Box 34 259, Birkenhead, Auckland 0746
Email: info@dystonia.org.nz
Website: www.dystonia.org.nz

New Zealand Early Menopause Support Group
Email: nzem.info@nzord.org.nz
Website: www.earlymenopause.org.nz

New Zealand Federation for Deaf Children
Postal address: P O Box 13266, Johnsonville, Wellington 6440
Freephone: 0800 332 324
Email: deafchildren@xtra.co.nz
Website: www.deafchildren.org.nz

New Zealand Gynaecological Cancer Foundation
Postal address: PO Box 37 020, Parnell, Auckland 1151
Email: info@nzgcf.org.nz
Website: www.nzgcf.org.nz

New Zealand Liver Transplant Recipients Group
Postal address: C/- Liver Transplant Unit, Auckland Hospital, Private Bag 92 024, Auckland
Phone: 09 307 4949 x 6436
Email: aklivert@adhb.govt.nz
Website: www.livers.org.nz

New Zealand Painful Bladder Support Group
Postal address: PO Box 33 264, Christchurch
Phone: 03 347 9007
Email: weedot@xtra.co.nz

New Zealand Pulmonary Arterial Hypertension Group (NZPAH)
Phone: 09 236 8366
Email: info@nzpah.org.nz
Website: www.nzpah.org.nz

New Zealand Spinal Trust
Postal address: Private Bag 4708, Christchurch 8140
Phone: 03 383 6881
Email: info@nzspinaltrust.org.nz
Website: www.nzspinaltrust.org.nz

New Zealand Thyroid Disease Support Group
Postal address: 2/23 Balmain Road, Birkenhead, North Shore, Auckland
Phone: 09 480 2680
Email: thyroid.info@nzord.org.nz
Website: www.thyroidsupport.org.nz

New Zealand Tinnitus and Hyperacusis Support Network
Postal address: C/- Audiology, School of Population Health, University of Auckland, Private Bag 92 019, Auckland
Phone: 09 923 6316
Email: tinnitus@auckland.ac.nz
Website: www.tinnitus.org.nz

New Zealand VIEW - Vision Impaired Empowering Women support group
Postal address: PO Box 1395, Rotorua 3040
Phone: 07 348 2765
Email: nzview.info@nzord.org.nz

Ngati Kaapoo - Support group for blind Maori
Postal address: 510 Market Street South, Hastings
Phone: 06 878 9440
Freephone: 0800 770 990
Email: info@kapomaori.com
Website: www.kapomaori.com

Occulodentodigital Dysplasia Support Group
Postal address: 5 Taylor Street, Brighton, Dunedin
Phone: 03 481 1578
Email: od.info@nzord.org.nz

Oncogenic Osteomalacia Support Group
Postal address: 61 Robert Skelton Place, Auckland
Phone: 02102286387
Email: oo.info@nzord.org.nz

Orthostatic Tremor Support Group
Postal address: 160B Scott Street, Redwoodtown, Blenheim 7201
Phone: 03 5789821
Email: OT.info@nzord.org.nz

Osteoporosis New Zealand
Postal address: PO Box 688, Wellington
Phone: 04 499 4862
Email: info@bones.org.nz
Website: www.bones.org.nz

Overeaters Anonymous
Email: info@oaregion10.org
Website: www.oaregion10.org

Oxalosis & Hyperoxaluria Foundation - C/- Kidney Kids of New Zealand
Postal address: PO Box 13 732, Onehunga, Auckland 1643
Freephone: 0800 215 437
Email: admin@kidneykids.org.nz
Website: www.kidneykids.org.nz, www.ohf.org

Pachyonychia Congenita Support Group
Postal address: 9 Patey Street, Epsom, Auckland 1051
Phone: 09 524 8507
Email: pc.info@nzord.org.nz

Pain Action in New Zealand
Postal address: PO Box 32 074, Christchurch
Phone: 03 366 0716
Email: painz@snap.net.nz
Website: www.painz.org.nz

Parent to Parent New Zealand - support to parents of children with special needs
Postal address: PO Box 234, Waikato Mail Centre 3240
Phone: 07 853 8491
Freephone: 0508 236 236
Email: national@parent2parent.org.nz
Website: www.parent2parent.org.nz

Parenteral Nutrition Down Under - support for parenteral feeding for intestinal failure
Postal address: 5 Grahame Street, Devonport, Auckland 0624
Phone: 09 4460101 or 021608914
Email: contactpndu@gmail.com
Website: parenteral-nutrition-down-under.webs.com

Parents of Vision Impaired New Zealand
Postal address: PO Box 366 Waikato Mail Centre, Hamilton 3240
Phone: 07 839 4205
Freephone: 0800 312 019
Email: don@pvi.org.nz
Website: www.pvi.org.nz

Parkinsons New Zealand
Postal address: PO Box 11 067, Manners St, Wellington 6142
Phone: 04 472 2796
Freephone: 0800 473 4636
Email: info@parkinsons.org.nz
Website: www.parkinsons.org.nz

People First - by and for people with intellectual disabilities
Postal address: PO Box 9199, Marion Square, Wellington 6141
Phone: 04 381 3242
Freephone: 0800 206 070
Email: mail@peoplefirst.org.nz
Website: www.peoplefirst.org.nz

Perry Syndrome Support Group
Postal address: 149 Royal Park Drive, Parklands, Christchurch 8083
Phone: 03 383 0427
Email: perry.info@nzord.org.nz

Personal Advocacy Trust - support for people with intellectual disability
Postal address: PO Box 30 469, Lower Hutt
Phone: 04 385 9175
Email: advocacy@patrust.org.nz

Perthes Support Group
Phone: 027 474 2128
Email: perthesnz@yahoo.com.au
Website: www.kiwigypsynz.wix.com/perthes

Phace Syndrome Support Group
Phone: 07 542 0740
Email: phace.info@nzord.org.nz

Phobic Trust of New Zealand
Postal address: PO Box 41 133, St Lukes, Auckland 1346
Phone: 09 846 9776
Freephone: 0800 14 Anxiety or 0800 14 269 4389
Email: clinic@phobic.org.nz
Website: www.phobic.org.nz

PKU New Zealand Charitable Trust
Postal address: c/- PO Box 210, Nelson
Phone: 09 835 4796
Email: pkunztrust@gmail.com

PNH Support Association of New Zealand - support for Paroxysmal Nocturnal Haemoglobinuria
Postal address: 4 Triton Ave., Mt Roskill, Auckland 1025
Phone: 021 115 3790
Email: admin@pnhsanz.org.nz
Website: www.pnhsanz.org.nz

PNP-Post Natal Psychosis Support Group
Phone: 027 248 1958
Email: pnp.info@nzord.org.nz
Website: www.healthpoint.co.nz/the-post-natal-psychosis-support-group/

Polio NZ Inc
Postal address: P.O. Box 260, Mosgiel 9053
Freephone: 0800 476 546 (0800 4 POLIO)
Email: secretary@polio.org.nz
Website: www.polio.org.nz

Polycystic Ovarian Syndrome Foundation
Postal address: 2/2 Hulme Place Henderson Auckland 0612
Phone: 09 835 4840
Email: info@thepcosfoundation.co.nz
Website: www.thepcosfoundation.co.nz

Porphyria Support Group
Postal address: 10 Muir Ave, Halswell, Christchurch
Phone: 03 322 8877
Email: porphyria.info@nzord.org.nz
Website: www.porphyria.org.nz

Positive Women - support for women and families living with HIV/AIDS
Postal address: P.O. Box 56076 Dominion Road, Auckland 1446
Phone: 09 623 9183
Freephone: 0800 POZTIV (0800 769 848)
Email: positivewomen@xtra.co.nz
Website: www.positivewomen.org.nz

Prader-Willi Syndrome Association of New Zealand
Postal address: PO Box 258, Silverdale, Auckland 0944
Phone: 09 427 5404
Freephone: 0800 4 PWS HELP ( 0800 4 797 4357)
Email: ceo@pws.org.nz
Website: www.pws.org.nz

Primary Sclerosing Cholangitis Support Group
Postal address: PO Box 60 175, Titirangi, Auckland 0604
Email: info@psckiwiaction.org
Website: www.psckiwiaction.org

Prostate Cancer Foundation of New Zealand
Postal address: P O Box 301313, Albany, Auckland
Phone: 03 454 4122
Freephone: 0800 4 PROSTATE ( 0800 4 7767818)
Email: info@prostate.org.nz
Website: www.prostate.org.nz

Pseudotumor Cerebri/Intracranial Hypertension Support Group
Postal address: 54 Beach Valley Rd, Piha, Waitakere
Phone: 021 969 924
Email: pcih.info@nzord.org.nz

Psoriasis Association (Southland) - has contacts for other areas
Postal address: 266 Conyers St, Invercargill, 9812
Phone: 03 216 8662
Email: psoriasis.info@nzord.org.nz
Website: www.psoriasis.org.nz

PSP Support Network of New Zealand - support for Progressive Supranuclear Palsy
Postal address: 25 Gilligan Close, Wanganui
Phone: 06 345 2211
Email: psp.info@nzord.org.nz

Pulmonary Fibrosis Support Group
Postal address: 8 Domigan Street, Brockville, Dunedin 9011
Phone: 03 476 2569
Email: pf.info@nzord.org.nz
Website: www.pulmonaryfibrosis.org.nz

PXE International - support for Pseudoxanthoma Elasticum
Postal address: P O Box 911 022, Victoria Street West, Auckland 1142
Phone: 027 457 8123
Email: pxe.info@nzord.org.nz
Website: www.pxe.org

Rare Fat Disorders Support Group (Pacific Australia) - Support for those living with Dercum's Disease, Lipedema, Madelung's Disease and FML.
Email: rfd.info@nzord.org.nz
Website: www.facebook.com/groups/254369064687807/

Restless Legs Syndrome Support Group
Postal address: 22 Greenhill Rd, Annesbrook, Nelson 7011
Phone: 03 548 6398
Email: restlesslegs.info@nzord.org.nz

Retina New Zealand
Postal address: PO Box 2232, Raumati Beach 5255, Paraparaumu
Phone: 04 299 1801
Freephone: 0800 LOW VIS (0800 569 849)
Email: retina@retina.org.nz
Website: www.retina.org.nz

Rett New Zealand - support for Rett Syndrome
Postal address: PO Box 28 049, Wellington
Phone: 04 475 9265
Email: rett.info@nzord.org.nz
Website: www.rettsyndrome.org.nz

Royal New Zealand Plunket Society - support and information on child and family health
Postal address: PO Box 5474, Wellington 6145
Phone: 04 471 0177
Freephone: 0800 933 922
Email: plunket@plunket.org.nz
Website: www.plunket.org.nz

SAFDA - Support After Foetal Diagnosis of Abnormality
Email: safda.info@nzord.org.nz

Sands New Zealand - Stillbirth and Newborn Death Support
Postal address: P O Box 136, Hamilton 3240
Phone: 04 478 0895
Email: contact@sands.org.nz
Website: www.sands.org.nz

Save Sight Society
Postal address: 8 Upland Road Kelburn, Wellington
Phone: 04 475 9559
Email: info@savesightsociety.org.nz
Website: www.savesightsociety.org.nz

Scleroderma Support Group New Zealand
Postal address: 19 Thatcher Cres, Crofton Downs, Wellington 6035
Phone: 04 479 5548
Email: scleroderma.info@nzord.org.nz
Website: www.scleroderma.org.nz

Selective Mutism Parent Support Group
Email: sm.info@nzord.org.nz

Sjogren's Syndrome New Zealand
Postal address: P.O. Box 314105, Orewa, Auckland 0946
Phone: 09 478 7041
Email: sjogrens.info@nzord.org.nz
Website: www.sjogrensnewzealand.co.nz

Skylight Trust - counselling for grief and loss for children and their families
Postal address: PO Box 7309, Newtown, Wellington South
Phone: 04 939 6767
Freephone: 0800 299 100
Email: reception@skylight-trust.org.nz
Website: www.skylight.org.nz

Sleep Apnoea Association of New Zealand
Postal address: PO Box 88, Hamilton 3240
Phone: 07 854 0462
Email: saanz.secretary@gmail.com
Website: www.sleepapnoeanz.org.nz

SOFT - support group for Trisomy 13/18
Postal address: 123 Lethbridge Street, Feilding
Phone: 06 323 2730
Email: soft.info@nzord.org.nz

Spasmodic Dysphonia Support Group
Postal address: PO Box 305 375, Triton Plaza, North Shore 0757
Email: info@dystonia.org.nz
Website: www.dystonia.org.nz

SpeakEasy - support for people who stutter
Postal address: P O Box 16554, Hornby, Christchurch 8441
Website: www.speakeasynz.org.nz

SPELD - support group for Dyslexia and other learning disabilities
Postal address: P O Box 24617, Royal Oak, Auckland 1345
Phone: 09 624 0839
Freephone: 0800 773 536
Email: admin@speld.org.nz
Website: www.speld.org.nz

Spina Bifida Association of New Zealand
Postal address: 181 Beer Rd, RD1, Cambridge 3493
Phone: 07 827 4239
Email: spinabifidanz@zoho.com
Website: www.spinabifida.org.nz
Online Forum: https://www.facebook.com/groups/SpinabifidaNZ

SPINZ - Suicide Prevention Information New Zealand
Postal address: PO Box 10 051, Auckland 1446
Phone: 09 623 4813
Email: info@spinz.org.nz
Website: www.spinz.org.nz

St John Caring Caller - support for those who are housebound or live alone
Freephone: 0800 ST JOHN (0800 485 646)
Email: enquiries@stjohn.org.nz
Website: www.stjohn.org.nz/What-we-do/Community-programmes/Caring-caller/

Stroke Foundation of New Zealand
Postal address: PO Box 12 482, Wellington
Phone: 04 472 8099
Freephone: 0800 STROKE (0800 787653)
Email: strokenz@stroke.org.nz
Website: www.stroke.org.nz

Superficial Siderosis Support Group
Postal address: C/- Mr D Hill, 9 Ascot Road, Weston, Oamaru 9401
Phone: 03 434 5644
Email: sssurvivors@clear.net.nz
Website: superficialsiderosis.wordpress.com

Supporting Families in Mental Illness
Postal address: P O Box 78122, Grey Lynn, Auckland 1245
Freephone: 0800 732 825
Email: office@supportingfamiliesnz.org.nz
Website: www.supportingfamiliesnz.org.nz

Sweets Syndrome
Postal address: 3/803 Heretaunga Street East, Park Value, Hastings 4122
Phone: 06 878 9414
Email: sweetsyndrome.info@nzord.org.nz
Website: helpforsweetssyndromeuk.wordpress.com

Syringomyelia Support Group
Postal address: 11 Tothill St, New Plymouth
Phone: 06 753 6519
Email: syringomyelia.info@nzord.org.nz
Website: www.syringonz.org.nz

TABS New Zealand - support for post traumatic stress disorder after childbirth
Website: www.tabs.org.nz

Tarlov Cyst New Zealand
Postal address: PO Box 85, New Plymouth
Phone: 027 498 6667
Email: tarlov.info@nzord.org.nz

Tourette's Association of NZ
Postal address: 33 Brabourne Street, Hillsborough, Chch 8022
Phone: 03 332 0989
Email: info@tourettes.org.nz
Website: www.tourettes.org.nz

Transverse Myelitis Support Group
Postal address: PO Box 95 087, Swanson, Auckland
Phone: 09 810 9807
Email: transversemyelitis.info@nzord.org.nz
Website: www.myelitis.org

Trigeminal Neuralgia Support New Zealand
Email: TN.info@nzord.org.nz

Tuberous Sclerosis Complex New Zealand (TSCNZ)
Postal address: 7 Loasby Pl, Greytown 5712
Phone: 0211547017
Email: info@tsc.org.nz
Website: www.tsc.org.nz

Turner Syndrome Support Group NZ Inc.
Postal address: P O Box 4285, Hamilton East 3247
Email: info@turnersyndrome.co.nz
Website: www.turnersyndrome.co.nz
Online Forum: www.facebook.com/pages/TSSG-NZ/212846682016

Unicorn Foundation - Seeking the cure for Neuroendocrine Cancers
Postal address: P O Box 87 064, Meadowbank, Auckland 1742
Phone: 021 354 342
Email: hello@unicornfoundation.org.nz
Website: www.unicornfoundation.org.nz

Unique - Rare chromosome disorders support
Email: rarechromo@nzord.org.nz
Website: www.rarechromo.org

Vasculitis Support New Zealand
Postal address: 70 Royal Park Drive, Parklands, Christchurch
Phone: 03 383 9128
Email: vasculitis.info@nzord.org.nz
Website: www.vasculitis.org.nz

VCFS Support Group - support for Velo Cardio Facial Syndrome
Postal address: c/- Parent and Family Resource Centre, PO Box 13385 , Onehunga, Auckland
Phone: 09 636 0351
Email: vcfs.info@nzord.org.nz
Website: www.vcfs.org.nz

Vein of Galen Malformation Support Group
Email: vgm.info@nzord.org.nz
Website: www.veinofgalen.org.nz

VHL Family Alliance New Zealand - support for Von Hippel–Lindau Disease
Postal address: 17 Kate Sheppard Ave, Torbay, Auckland
Phone: 09 473 0900
Email: vhl.info@nzord.org.nz
Website: www.vhl.org.nz

Wegeners Granulomatosis Support Group
Postal address: 2a Fairclough Road, Beach Haven, North Shore, Auckland
Phone: 027 277 8775
Email: wg.info@nzord.org.nz
Website: www.wegeners.org.nz

Williams Syndrome Association
Postal address: 5248B Bush Road, Ngatea
Phone: 07 8677710 or 027 6372524
Email: wsanz.info@nzord.org.nz
Website: www.williams-syndrome.org.nz

Womens Health Action Trust
Postal address: PO Box 9947, Newmarket, Auckland 1149
Phone: 09 520 5295
Email: info@womens-health.org.nz
Website: www.womens-health.org.nz

XLH Network - Support for X-linked Hypophosphatemia
Postal address: Flat 1/77 Fairfield Avenue, Addington, Christchurch
Phone: 03 980 0535
Email: xlh.info@nzord.org.nz
Website: www.XLHNetwork.org

Vayla