What we do

NZORD offers a central starting point for patients and families affected by rare disorders, and helps families and patients find the essential information and support groups they require.

NZORD operates on a national level and provides mostly “online” information resources for people with rare disorders and their families. NZORD provides direct support to assist small groups to operate effectively by providing:

NZORD works with rare disease groups and ensures their concerns and interests are communicated to health officials during consultation processes, this ensures that collectively our rare voices can be heard.