EDS Clinical Pathway
Ehlers–Danlos syndrome (EDS) and Hypermobility Spectrum Disorders (HSD) are connective tissue disorders which have symptoms that can overlap with, and be misdiagnosed as, many other disorders including things like seronegative rheumatoid arthritis, fibromyalgia and Chronic Fatigue Syndrome. This can create a complicated and confusing picture for Health Care Professionals (HCP) as they are faced with an array of complex symptoms. They may think of them in isolation, rather than as part of a defined syndrome.
Many people with EDS may be undiagnosed or misdiagnosed and left to feel dismissed by the medical community. This issue highlights the importance of having a guiding document to direct HCPs to make the correct diagnosis in a timely manner. NZORD worked with a dedicated specialised working group to develop an EDS Clinical Pathway document to offer a guide for doctors, physiotherapists, osteopaths and other HCPs. This document highlights considerations when diagnosing a potential EDS patient and gives a helpful approach to beginning management.