NZORD Education Sessions 2019


NZORD is running a free Education Session for the chance to meet, talk and share with others living with rare disorders. This will be a morning meeting in Wellington with two speakers and a workshop dedicated to addressing some of the challenges faced by those with rare disorders to help in creating a vision for navigating your own complex health journey. The workshop will also offer skills of resilience and being an advocate warrior for yourself or your loved one.

Date and location

Tuesday 26 February

10am – 12.45pm

Life Centre, 21 Hania Street, Wellington

Free of charge


9.45 Registration
10.00 NZORD overview – how to connect with other support groups
10.10 First speaker (Caroline De Luca from PHARMAC)
10.30 Questions
10.40 Second speaker (Carer’s Alliance representative)
11.00 Questions
11.10 Morning tea
11.20 Workshop sessions: Your vision for living your life/Being an advocate warrior for your health (facilitated by life coach Tracey Hancock and NZORD staff)
12.20 Group debrief: An opportunity to share and discuss challenges, learnings and successes
12.45 Session ends


To register for this education session please fill in the form below or email us at