Applications for medicines for rare disorders
In some cases, more than one application was received for the same medicine from different suppliers. These 13 medicines have been published on PHARMAC’s website.
The Rare Disorders Subcommittee will consider these applications at its first meeting in November 2018. The application tracker will be updated with the Subcommittee minutes once they are available.
NZORD is hopeful that some of these medicines will be funded as the Minister of Health has indicated rare disorders are a priority for him as indicated in his letter of expectation to PHARMAC in July.