Mental health inquiry
The catalyst for the inquiry has been widespread concern about mental health services, within the mental health sector and the broader community. Service users, their families and whānau, people affected by suicide, people working in health, media, iwi and advocacy groups have called for a wide-ranging inquiry.
NZORD would like to add the voices of the rare community to this important piece of work. We are working on a submission detailing the experiences of the rare disease community based on issues communicated via our enquiries line.
How you can get your voice heard:
Date: April to May 2018
Learn more: Government Inquiry into Mental Health and Addiction
Questions to consider:
- How has your journey to diagnosis and the stresses involved affected you and your family?
- How have the challenges of access to treatment, support, testing impacted on your mental health?
- How have barriers to educational support/other forms of support impacted on your mental health?
- Any other stresses/impacts of the ongoing challenge of your condition on your mental health?
The inquiry includes direct public consultation. NZORD will post details of these meetings which will take place in May and June.