Introducing our Rare Disease Day Poster Child 2018
Gabrielle from Nelson is seven years old and has Dyskeratosis Congenita, a life-limiting telomere biology disorder.
Rare Disease Day takes place around the world on the last day of February each year. It is an opportunity to raise awareness of the over 7,000 rare disorders that combined affect eight percent of New Zealanders.
Gabrielle and her story will feature on the Rare Disease Day poster as well as a giant billboard in Wellington. NZORD will also share her story on our website, with media contacts and through social media.