Greetings from the NZORD Chief Executive
Happy New Year and welcome to the first NZORD Newsletter Update for 2018.
Our team is very busy focusing on preparations for our Rare Disease Day symposium "New Horizons" taking place in Auckland on 22 February. The aim is to create awareness about rare diseases, and the people and their families/whānau who are living with a rare disease, while also providing an opportunity for you all to build networks and relationships.
We are pleased to announce we have secured two more key speakers: Dr Callum Wilson, a metabolic paediatrician at Starship Hospital; and Dr Andrew Munkacsi, senior lecturer and research scientist at Victoria University of Wellington. There are a limited number of seats left so If you would like to attend our symposium, please urgently register via our website!
In other highlights, read about our poster child Gabrielle’s story, the Rare Disease Day Raffle, our hunt for two new board members to help lead NZORD and our quest to update your contact details so we can communicate more effectively with our patients, support groups and valued stakeholders.
I sincerely look forward to meeting with as many of you as possible at our New Horizons Symposium on 22 February.
Dr Collette Bromhead