“I am very grateful that this service is still available” – survey respondent

19 December 2017

“Our enquiries phone and email service is a valuable resource used regularly by patients, family members and clinicians who require links to information and support for rare disorders,” says Lisa Crawford, Relationship Manager for NZORD.

Survey results:

  • 88% of respondents were satisfied or very satisfied with the assistance provided by NZORD.
  • 100% of respondents said that were likely or very likely to recommend NZORD to a friend or colleague.
  • 83% of respondents found the information provided either very or extremely helpful, while 17% found it somewhat helpful.
  • 83% of respondents found staff extremely approachable, while 17% found staff somewhat approachable.

“NZORD is dedicated to providing a great service and takes your feedback seriously,” says Lisa. “We are listening to your feedback and aim for continuous improvement in all the services we offer to the rare disorder community.”

Providing information and support to patients and their families is one of the main strategic aims of NZORD. We intend to survey the people who use our enquiries line every two months to ensure we continue this high standard of service.

In future surveys, we will also request feedback about the types of information and support that are most valuable to the rare disorder community in New Zealand, helping to clarify our wider work plan.