Find a support group

Support groups can provide immense support, advice and information to people who are impacted by rare disease.

Search our directory of rare disease support groups in New Zealand (and international groups), plus links to health and disability services.

If you represent a support group that is not included in our directory or cannot find a group, please let us know: or 04 385 1119.

For information on setting up a rare disease support group visit our page on guidance on setting up a group.